social security

I hope someone can help with this. I am visiting my mom who lives in southern Illinois, she has als. She is completly bedridden. Hospice comes in 2 times a week and my dad takes full care of mom. I live in California so I am not much help. How can we get her full care without paying $100 a...

hi everyone. i am enquiring for my friend delb about part D of medicare to pay for his als drugs. his als worker said she did not know anything about it,was supposed to be checking but that was nearly 2wks ago. he needs part D and a list of 20 pharmacies to take his perscripion to. does anyone...

I know there have been several threads that have included the discussion of voice change with eating or drinking. For the most part, until very recently, I hadn't noticed that much of a change myself ~ not nearly as much as just using my voice in general. However, I have had more voice...

Well, first the good news: My husband received his "award notice" (that is how they label it, award notice!) that his disability is approved. He will receive his first "award" check by December 10, direct deposit, no retro in NJ. And his employer did not contribute to state so nothing until...

Anyone who struggles with insurance issues or finding 'help' for this disease difficult. I highly recommend getting in touch with a MDA/ALS Chapter in you area or region. I Registered with a Regional office in Eugene, Or., which covers my area here in N. Cal. I was sent afew forms to...

My wife, 46, was diagnosed with ALS 2 yrs ago. She has not worked outside the home enough to qualify for social security disability. Are there other options with social security? We most likely have to many "assets" to qualify. She has spoken of getting a divorce so that we do not loose what...

:)Thank you for your input. My husband Jerry has applied and is now on disability social security. I still think will need to have a secondary insurance when he does receive medicare. He did speak to someone in the Social Security office that sent him an application that states it's possible he...

Hello I have been here off and on since diagnosed in January, but believe this is my first post. I have very little use of my right hand and was wondering how I am going to continue using my computer? I hen peck with my left hand now...very slow process, lol! Also I have poor vision which slows...

I am really desperately needing help and feel I have no where else to turn.I tried to get my social security disability but I was denied all the way thru the hearing level.Now I am waiting on the appeals council to deny me,I also have startd a new application.I have a very hard time walking and...

Hi, I have DX of "MMN or Atypical ALS." I was first DX with ALS in Oct 2006. Dec 2006 U of Michigan ALS clinic said possible MMN - not sure. I started IVIG in January 2007. Revisit April and continued on IVIG X2 a month. Finger is atrophied on dominate hand (R) but since treatment I can...