social security

My husband was diagnosed in Feb of 2008. Like most of the stories I've read, our lives were getting to our time. Our kids were grown, he was 57, I was 54. I had quit my day job, and we had just opened our dream business, a quilt shop. He was going to retire in a year, and we were going to...

I read on this forum that Social Security disability is automatic with ALS, while employer's is not. Could somebody please elaborate what are the additional requirements ? My employer's LT Disability limits it to no more than 24 months for any neuromuscular condition (which is understandable)...

My name is Adam and I was diagnosed at Kaiser with ALS in 2000, yes 9 years ago. Re diagnosed by neurologist, re-re diagnosed at Forbes Norris in SF. I started having foot drop, then legs arms etc. I currently have g-tube and wear bipap 24hrs. I thought i'd write some hints and tips that have...

I was release last Monday from in-home to outpatient physical therapy. I went to the first session and they spent an hour and 15 minutes with me for the initial evaluation and exercise regiment. I was impressed and excited as to what this can do for me. Fast forward to Thursday, yesterday...

Well, my situation is a tad different than some people in this forum. I am home bound due to total disability from Hereditary Spastic Paraplegia or HSP. It is a serious deteriorating motor neuron disease that has no treatment or cure and only continues to get worse in degeneration of the...

Well, my situation is a tad different than some people in this forum. I am home bound due to total disability from Hereditary Spastic Paraplegia or HSP. It is a serious deteriorating motor neuron disease that has no treatment or cure and only continues to get worse in degeneration of the...

So far because my husband works from home he is still able to work. I really see this going away in the next 12 - 18 months though as he is declinging more and more. Does anyone know with PLS is it difficult to be declared disabled for Social Security purposes?

Happy Monday to all, I just got a message from a friend of mine about Social Security having a new group of diagnoses that will only take a matter of days for approval... ALS is one of the diagnoses. She said it was called "compassionate allowances"-I just thought I would ask "my family"...

Just picked up a report from my last neuro visit, a month ago. The only objective, important piece of information there was that my deep tendon reflexes are 3+ (brisk). I remember that they were normal (2+) 20 monthes earlier, with the same doctor. The rest of the report was... Well, firstly he...

And I am retired, or actually, on a (permanent) Leave of Absence for 120 days. No more paychecks, no more income. A few weeks ago my wife and I met with the (wonderful) VP of HR to discuss when my last day may be (the meeting was our idea). It is getting harder and harder to get ready for...