sma

  1. D

    Please help me understand my symptoms

    When I was 18 (2004) I started to notice that my right leg was weak (Calf area), constant twitches, and tremor in fingers. I had EMG done and it had the following conclusions (Translated from spanish, please excuse any mistakes): Abnormal results with signs of Peripheric motor neuron. Doctor...
  2. N

    My Sweetie has passed

    Richard Daniel Regalado (05/05/1956 - 02/25/2011) | Visit Guest Book REGALADO, Richard Daniel (Age 54) Passed on into the presence of the Lord on February 25, 2011 from complications due to ALS (Lou Gehrig's Disease). Rick endured the disease with dignity and bravery for 2 ½ years...
  3. R

    Intl Alliance of ALS/MND Associations - Ask The Experts Opportunity

    As a part of the big meetings in Orlando this week, an Ask The Experts session has been included for patients and their families. As you can see on the agenda, there are short discussion periods after each presentation for people to "Ask The Experts." If you are attending and would like to...
  4. hopingforcure

    Chris from the Bachelorette..

    Monday evening is the finale of the Bachelorette this season. Chris L. is one of the final 2 bachelor's, although they have not mentioned the disease his mother had, they have always mentioned that he went home to spend time with her while ailing, she is since passed away. I have found out she...
  5. M

    Has anyone tried these trial drugs?

    I am thinking about going on these trial drugs and wondering have any of you tried these drugs. Do not know if my doctor will give to me and is thinking about it. If not could any one advice me on a good company to buy over internet. What research is being done? The NINDS supports a broad...
  6. K

    My Dad - Forever in our Hearts

    My dad was a top notch guy. A State Trooper for 33 years, a member of the ski patrol at various ski areas in NY State for 20+ years. He was a wonderful craftsman and a real do it yourselfer. He loved tinkering, fast cars and his Harley. Most of all he loved his family. He retired from the...
  7. J

    Any similar experiences? Will this progress to ALS?

    I am hoping to gain any information from your experiences that you may kindly be willing to share. I am a male age 35 that noticed significant bilateral calf weakness/atrophy 3 years ago (I am unable to toe walk and difficult heel walk). Looking back the wasting started about 6 years ago. I...
  8. DgtofTNfan

    Wheelchair Specifications

    A recent post on here indicated that a PALS had a power wheelchair however the seating system did not include some features that would have been beneficial for care. In another thread a member had mentioned looking at scooters and quickly learned from this great community to skip the scooter and...
  9. rocmg

    Trophos in Europe

    From PharmaLive: Marseille, France, May 5th, 2009 - Trophos SA, a clinical stage pharmaceutical company developing innovative therapeutics for indications with under-served needs in neurology and cardiology, announced today the initiation of the pivotal efficacy study of olesoxime in...
  10. J

    Update after visit with neuromuscular doc

    It's been a while since I've posted on here and I had my visit with the neuromuscular specialist last week. We are 90 + % certain I do NOT have ALS or SMA or even PLS! Things seem to be pointing directly at Multiple Sclerosis and yet they aren't quite ready to give me an official diagnosis...
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