sma

  1. D

    Please help me understand my symptoms

    When I was 18 (2004) I started to notice that my right leg was weak (Calf area), constant twitches, and tremor in fingers. I had EMG done and it had the following conclusions (Translated from spanish, please excuse any mistakes): Abnormal results with signs of Peripheric motor neuron. Doctor...
    • doybal
    • Thread
    • als back bed confused cramps depressed emg fingers genetic ice mri please help please help me problems sma symptom symptoms test tremor twitches
    • Replies: 1
    • Forum: Could this be ALS?
  2. N

    My Sweetie has passed

    Richard Daniel Regalado (05/05/1956 - 02/25/2011) | Visit Guest Book REGALADO, Richard Daniel (Age 54) Passed on into the presence of the Lord on February 25, 2011 from complications due to ALS (Lou Gehrig's Disease). Rick endured the disease with dignity and bravery for 2 ½ years...
    • NancyJ
    • Thread
    • age als brother dad design early family gifts heart hours life lou gehrig's disease sma work
    • Replies: 17
    • Forum: In memory of
  3. R

    Intl Alliance of ALS/MND Associations - Ask The Experts Opportunity

    As a part of the big meetings in Orlando this week, an Ask The Experts session has been included for patients and their families. As you can see on the agenda, there are short discussion periods after each presentation for people to "Ask The Experts." If you are attending and would like to...
  4. hopingforcure

    Chris from the Bachelorette..

    Monday evening is the finale of the Bachelorette this season. Chris L. is one of the final 2 bachelor's, although they have not mentioned the disease his mother had, they have always mentioned that he went home to spend time with her while ailing, she is since passed away. I have found out she...
  5. M

    Has anyone tried these trial drugs?

    I am thinking about going on these trial drugs and wondering have any of you tried these drugs. Do not know if my doctor will give to me and is thinking about it. If not could any one advice me on a good company to buy over internet. What research is being done? The NINDS supports a broad...
    • Marypotter
    • Thread
    • ability advice age amino acid bdnf brain ceftriaxone diabetes drugs embryonic free immune lead life lithium motor neuron disease muscle muscles onset paralyzed progression quality of life research riluzole sma sod1 stem cells symptoms testing therapy treatments trial vitamins weight loss work
    • Replies: 4
    • Forum: Research and trials
  6. K

    My Dad - Forever in our Hearts

    My dad was a top notch guy. A State Trooper for 33 years, a member of the ski patrol at various ski areas in NY State for 20+ years. He was a wonderful craftsman and a real do it yourselfer. He loved tinkering, fast cars and his Harley. Most of all he loved his family. He retired from the...
    • kedevlin23
    • Thread
    • ability als back balance bipap book boston brain breathing chair clinic dad diagnosed diagnosis early family fatigue feeding feeding tube heart hope life locked in meds nausea neurologist parkinsons peg pneumonia progression quality of life research sma stages swallowing symptoms vent vomiting walker wanted
    • Replies: 25
    • Forum: In memory of
  7. J

    Any similar experiences? Will this progress to ALS?

    I am hoping to gain any information from your experiences that you may kindly be willing to share. I am a male age 35 that noticed significant bilateral calf weakness/atrophy 3 years ago (I am unable to toe walk and difficult heel walk). Looking back the wasting started about 6 years ago. I...
    • JRusty
    • Thread
    • age als als? anxiety atrophy back biopsy clinic clinical diagnosis fasciculations information muscle biopsy muscle weakness muscles onset pain problems progression sma tests umn weakness worries
    • Replies: 2
    • Forum: Could this be ALS?
  8. DgtofTNfan

    Wheelchair Specifications

    A recent post on here indicated that a PALS had a power wheelchair however the seating system did not include some features that would have been beneficial for care. In another thread a member had mentioned looking at scooters and quickly learned from this great community to skip the scooter and...
    • DgtofTNfan
    • Thread
    • atrophy back brain brain injury cals dad diagnosis elevator grant helpful medicare mobility permobil planning power power wheelchair roho sma supplement support technology trial voice wheelchair
    • Replies: 4
    • Forum: Tips, tricks, and gadgets
  9. rocmg

    Trophos in Europe

    From PharmaLive: Marseille, France, May 5th, 2009 - Trophos SA, a clinical stage pharmaceutical company developing innovative therapeutics for indications with under-served needs in neurology and cardiology, announced today the initiation of the pivotal efficacy study of olesoxime in...
    • rocmg
    • Thread
    • advice age als atrophy cell clinical clinical study data design diagnosed diagnosis early family food functional rating scale grant hope lead life lou gehrig's disease manual medical medicine neurology planning professor quality of life research respiratory riluzole sma sod1 stress testing treatment treatments trial volunteers website work
    • Replies: 1
    • Forum: Research and trials
  10. J

    Update after visit with neuromuscular doc

    It's been a while since I've posted on here and I had my visit with the neuromuscular specialist last week. We are 90 + % certain I do NOT have ALS or SMA or even PLS! Things seem to be pointing directly at Multiple Sclerosis and yet they aren't quite ready to give me an official diagnosis...
    • jennibf
    • Thread
    • als back children diagnosis fear friend hope life pain pls power sma symptoms update
    • Replies: 11
    • Forum: Could this be ALS?
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