sma

  1. lgelb

    Biogen acquires two ALS candidates

    "Today Biogen announced it has acquired ALG-801 (Phase 1a) and ALG-802 (preclinical) from AliveGen, Inc. ALG-801 (now known as BIIB110) and ALG-802 represent novel ways of targeting the myostatin pathway, which is one of the most thoroughly studied approaches for muscle enhancement. BIIB110...
  2. J

    SMA or ALS

    Hi everyone, first of all, english is not my native language so sorry if my words confuse you. So I have been diagnosed with a mild type of SMA for 7 years, since I was 16-17 year old. I do a check up once every 2 years, and the result is still SMA everytime. The disease first starts with my...
  3. C

    diagnosed

    Hi to all, after 5 days stay in ALS clinik in Germany, I was finally diagnosed with bulbar onsen ALS with sensory involment... The professor told me that when the people are young there was more evidence of widespread muscle wasting in onset with sensory stuff.... I also have tongue wasting...
  4. A

    Common 'Cure' for SMA and ALS

    I saw this a few months back: Harvard Scientists: ALS, SMA Cure Found While Schizophrenia Treatment Is Uncertain [Video] : College : University Herald Does anyone know more info about the above?
  5. J

    Suspect ALS Please Help

    Hey, i am 18 Years Old and i am from Germany. I have read very much here since i started to get fasciculations at my whole body. I have to say that i am very hypochondrial (Is this the right translation?) i always think the worst maybe because of googeling everything i notice. But what makes me...
  6. fizz

    Hi from another lurker-turned-member!

    I've been lurking for a while and enjoying all the input from everyone, and I figured I should probably say hi before I start replying to posts. :) I'm Fizz, I'm 24, and was diagnosed 2 years ago with a neuromuscular disease that everyone is somewhat confident (finally) is SMA. I've got a cool...
  7. MaxEidswick

    Legislation Ensuring Access to Clinical Trials for People with Neuromuscular Diseases

    July 17, 2015 Stay Connected Legislation Ensuring Access to Clinical Trials for People with Neuromuscular Diseases Passes U.S. Senate On July 16, 2015, the U.S. Senate passed the Ensuring Access to Clinical Trials Act (S.139), which removes barriers for those with neuromuscular...
  8. N

    EMG pretty bad..

    Hi 41 year old man here.. Here is my story.. I have always had very thin shoulders and arms. (The other kids made a little fun of me in school). I have never done any systematic exercise or working out. The last couple of years i have increasingly felt weakness in my arms. Especially when...
  9. 4tloml

    Asking for questions to ask doctors...

    Asking for questions to ask doctors… I posted on your DIHALS re my husband several days ago after his 3rd neurologist referred him back for an EMG with the director of our ALS clinic. (First neurologist diagnosed bulbar-onset ALS in April 2013, sent him for EMG and 2nd opinion with ALS clinic...
  10. S

    A worried Scotsman that has read the stickies.

    Hi there, I have read the stickies and I hope you don't mind me asking a few questions now that I have. My symptoms have been the same from day one, I have felt as tho I can't hold myself up usually once a day. This feeling just comes on, usually with a burning fatigue style pain in my back rib...
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