slow progression

  1. Lkaibel

    It's The Small Things...

    I did some small things today that made me feel better. I moved the weights and bench from the middle of the basement that I had to look at every time I fed the cats (he does not do that anymore). He had not used them since November and today I realized it was paining me to see those All The...
  2. X

    Questions regarding extent and prognosis of MND

    Hi guys, Following my initial post (here) series of tests later, second opinion doctor agree's on MND as the clinical diagnosis. I have a very atypical onset of symptoms and slow progression and hence, unable to find a patient story that is similar to my case. I hope you guys can help me with...
  3. kellykago

    Definite Diagnosis

    I received my official diagnosis of ALS on 12/16/16. I knew in my mind that I had it, but was continuing to hope and pray for an alternate diagnosis. I've had some minor progression in my speech articulation and some vocal quality (raspy) changes in addition to EMG findings on my tongue and...
  4. C

    My first post, just diagnosed the other day

    I have been on the sidelines reading thru different threads and searching for answers for some time. I received my diagnosis the other day. Slowly Progressive ALS, I understand I am very fortunate that my disease progressing is very slow, but the reality is still hard to comprehend, especially...
  5. Lkaibel

    Off to Clinic We Went...

    I think Clinic days must be a thing at the moment, Nuts and Sooner but had them too. We had a generally unremarkable visit. The Doctor noted some slight progression in ankle weakness, not so much in the left hand which is hurting. He said that for the hand we actually need a hand specialist...
  6. C

    Diagnosed yesterday...

    Mod note to future readers: Corwin's diagnosis was reversed and he was told not ALS. Please see his post on 2/16/2017 Yesterday I went to als clinic in Istanbul, Tyrkey and was diagnosed after 5 minutes exam and 2 hours EMG with bulbar Als. Doc thinks atypical because of the sensory symptoms...
  7. KimT

    Need Advice

    I'm in a lot of pain and some of it is from packing and bending with weak muscles. Much of it is from the sprained ankle that didn't heal. The rest is just this beast. I went from walking fast to a wheelchair. I have a transport chair and one I can roll myself. I'm ordering a light power...
  8. H

    Drug trial

    I was diagnosed in March of this year. Onset August 2015. Monday I will start participation in a drug trial for a drug that has been used to treat rheumatoid arthritis. The hope is that it will slow progression. I was tested for inflamation markers which were positive to allow me to...
  9. kellykago

    Waiting for a Diagnosis

    My name is Kelly and I am 47 years old. My father passed away from bulbar onset ALS in February 2012, after a 4 month battle. About a year ago, I began noticing slight slurring of my words. It wasn't all the time, so I dismissed it. About Jan or Feb of 2016 I began noticing that my...
  10. X

    I need clarification (MND; possible diagnosis ALS)

    Hi, I have been under supervision, for 4 years now. It all started with noticing that I could not lift the pinky finger of my right hand, and slowly it has spread to the entire right hand. I can not lift the fingers of my right hand (say no more than 10 degrees from vertical down, and with some...
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