sleep

  1. T

    Symptom Questions from 35/m

    Hello, I hope you are well or as well as possible. Thank you for checking this thread and thank you for making this section of the forum. It must be very difficult for some members. Your patience for those of us with questions is greatly appreciated. I've refrained from ALS symptom-checking on...
  2. J

    Neudexta

    Hello everyone, I was wondering if neudexta is safe to take for an als patient that doesnt have pba. Ive managed to get the medication from someone in the states. My pals is taking amitriptyline pills and cbd oil both for sleep and to help with mucus problems. she is having difficulty talking...
  3. D

    Ear “throbbing”

    Left ear seems to be quite often “throbbing” a little. I have worn hearing aids for several years and have occasionally had this feeling, but not this often and for this long. Could this be ALS related? This kept me up for some time during the night. Could not get back to sleep for awhile.
  4. K

    Waiting on Neuro, scared.

    Hi, Thank you in advance for your time. I've read many of the posts here and I am in a similar situation. My grandmother died at age 76 from ALS, and it has given me a lot of anxiety over the past 10 years related to it. I also had a more distant relative (a cousin of my father) who I believe...
  5. R

    Worsening Symptoms and Second EMG

    Previous thread: Terrified Bulbar or Limb Onset? Varying Symptoms Sorry for posting again, but I've been having daily crying spells. I've tried to stay off the internet researching my symptoms, since the last time I posted my "Central Sleep Apnea" has seem to resolve after a few rounds of...
  6. B

    C9 carrier with possible symptoms

    Hello everyone! This ended up being a very long post so I I'm going to put a tldr at the end for those of you with limited energy. This is my first post here and as a c9 carrier I will likely be lurking around for a while as it is the most comfort I have found so far. I want to say thank you...
  7. M

    concern over recent symptoms

    Hi all, First of all, thanks in advance to anybody who takes the time to reply to my post. I am a 32-year-old caucasian man currently living in Los Angeles. My symptoms started about 8 months ago with some intermittent muscle twitching that I noticed on and off in my neck, biceps, legs, all over...
  8. M

    Concern over recent symptoms

    Hi all, First of all, thanks in advance to anybody who takes the time to reply to my post. I am a 32-year-old caucasian man currently living in Los Angeles. My symptoms started about 8 months ago with some intermittent muscle twitching that I noticed on and off in my neck, biceps, legs, all...
  9. C

    Body twitches/ hand jerk

    Hi I’m brand new to the board I’m a 52 year old male,and have just one question. I have for the past two months experienced body twitches all over,some in my thighs, calves tricep, rib, buttocks and eyelid . I also had one episode upon waking in the morning kinda half way between awake and sleep...
  10. D

    Worried

    Hey everyone, thanks for reading. I am a 24 year old girl, no family history of ALS. I KNOW that I have health anxiety but I can’t seem to shake the idea that what I’m experiencing might be ALS. So two weeks ago I was home and my finger was twitching. Naturally I panicked and googled and ALS...
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