sleep

  1. E

    Can't shake the worry...

    So, I just wanted to first say thank you to anyone who comes on here and despite what you are going through tries to put the minds of what are probably many hypochondriac at ease. It's very kind of you to do that... and I hope I am just another hypochondriac. My situation is as follows...
  2. Lkaibel

    A Place to Speak My Truths

    That is what this forum is to me. I am happy for any constructive, supportive things I can do for others but I honestly just love how I can say what I mean here about my own life. People ask me how Brian is, bless their hearts. I appreciate it, and I say he is okay/stable. I may change that to...
  3. N

    BiPap mask for a bulbar onset patient?

    Hi Everyone, My father started with a BiPap machine last week, and it doesn't seem to work. He is bulbar onset, and right now can't keep his mouth closed other than by holding it with his hands, which he can still do, but it's not easy even now (and his hands are weakening). He has to press...
  4. R

    Life update

    Hi everyone, I haven't posted on this forum in over a year now and I've been missing it in my life! My dad was diagnosed with ALS 2 years ago (age 57), and it was around mid-last year that I discovered this forum. It allowed me to connect with people also affected by the disease, who understood...
  5. M

    Terrified; please help!

    Hi everyone, I'll try to be brief as I am very upset right now and my wording will probably be jumbled (also, not native English speaker). So, I'm 25, female and about 2-3 weeks ago, I started noticing muscle twitches in my right calf. Eventually, I would notice them somewhere else but the...
  6. M

    ALS Symptoms. Why you (MOST LIKELY) don't have ALS.

    Introduction Like you, I was in this forum worried sick I had ALS, Heck! Not only that! I was 1000% certain I had ALS, there was not a doubt in my mind my days were numbered. I had stopped any plans whatsoever for the future because I was certain I would be on a wheelchair watching my days go...
  7. Y

    Someone Please Explain Cramping to me?

    I've spoken to a doctor and still was unclear how this cramping phenomenon works with MND patients. Here are my questions, and a brief story of myself (Yes, I know I've been on here before). 1. Are your cramps sudden, and often during periods of inactivity? 2. How long do the cramps last...
  8. KatieNBoyd

    Knowing that I missed it and living with it

    Here I am going on 9 months since my PALS death I have gone to grief counseling, I see a therapist and I write in my journal. There is the part of me that knows that I did every thing I was suppose to do. But there is the part of me that repeats over and over the night Jon died. I got him...
  9. L

    Update on symptoms

    Hi again everyone, I posted on here a couple of months ago regarding concerning symptoms but the thread is now closed; I feel my symptoms are progressing so am posting an update in the hope that someone can give me their insight as I remain very concerned. On my last neurologist appointment 3...
  10. N

    My Father

    Hi All, My father passed away on 8th Aug 2017 from ALS. I am writing this for others who may find our experience helpful. We live in Mumbai, India. My father showed symptoms for ALS since Feb 2016. Initial symptoms included weight loss, weakness, lethargy (especially in the morning) and...
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