sleep

About a month and a half ago or so, my energy level just plummeted off a cliff. It's a struggle to do anything. I get really tired going up stairs. I get tired walking. I get tired feeding. I usually don't really get out of bed until noon. I manage to get a couple feedings in before that, but I...

Hi, Please don't block or ban me. I promise that I wont disturb you and I am here only to ask valid questions. Somehow I was misunderstood last time and I was blocked. First of all Thank you all for the help. History : 2006 - Right leg weakness 2006 - 2017- guess very slowly growing weakness(...

Hi, I am new here although I have been reading some forums for a couple of weeks. Just wanted to get your opinion on my symptoms: Started with a chills sensation that lasted three days along with pins and needles on my head in May but stopped after that. This followed with some hard headaches...

Having trouble with persistent nausea since my radicava nightmare. My doctor and dietician have me started on a slow drip feed with a kangaroo pump in an effort to get more calories in me. I struggle to break 1000 a day. I am trying to figure out how to sleep with this and not pull the tube...

Hello, I understand that people here are going through one of the most draining years of their lives, and me crying about symptoms may not be the best thing to do here but if anyone can help with answers, I will be thankful. I'm 27/28. Its been two years since since the symptoms started, and I...

Hello, I've been diagnosed with ALS for two years now and I have a hard time getting comfortable in bed. I have pain from my hips to my knees. I have a hospital bed with the circulated type air mattress. I sleep on my side and I can manage to get on stomach when the leg pain sets in. Then I...

First of all I can't believe I'm doing this. I am so sorry if this is disrespectful. I just feel so alone and scared. The past few weeks have been a nightmare. First I felt terrible, I will admit I am under huge amount of stress. But it all cummulatrd one night when I had a extremely painful...

Hello Everybody, My dad's disease makes him more and more miserable, and he has less and less patience. Now he is upset that he is supposed to use his BiPap and cough assist. Neither works really well for him. With the BiPap, he constantly complains that it leeks into his eyes, and he has eye...

Anyone out there going through menopause with ALS? The reason for treatment is for extreme hot flashes and no sleep. Not sure about adding hormones to the mix. If anyone has had experience with this combination would welcome advice.

3 weeks ago while on vacation I develop tingling on outside of left foot and hand. Week 2 That continued and turned into pain in left arm and cramping along inside and outside of elbow into hand ( ulnar nerve ?). This limited mobility in my hand and cramped my thumb, pinky and ring finger. Pain...