Hello strong people. I am 24 years old and lives in Sweden. I am living in big fear. I got alot anxiety the last 6 months. I am not myself. I am so scared of having ALS. My girlfriend is in wheelchair and cant use hands or legs from a car accident before we met. She is also 7 months pregnant. I...
Greetings, PALS. I'm new at this ALS stuff, and I feel like I'm reinventing the wheel. Herewith some of my (dumb?) questions:
What are the most comfortable kinds of clothes to wear while sitting in a wheelchair most of the day? Not the jeans I used to live in, I know. And my shirts and...
We have become pros at avoiding denials of coverage for high-mobility DME (wheelchair, patient lift, hospital bed, slings, tilting shower chair, etc.). We have won all of our appeals for the equipment we need and now have high-level personal contacts with all DME decision-makers. Here are some...
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I know that this is a very tough subject. I hope that it does not offend anyone, and I mean it to be more of a reaching out to see if there are others that seem to have the same issues. 5 1/2 years ago, after my husband went on a vent, we tried to keep our sex life going. He could not move...
Sadly I have come to the conclusion that my PALS does have FTD.
No I haven't had it diagnosed by a doc tor
But I have had many discussions with other health professionals in our care team, some small things that they have now witnessed and with my ALS coordinator. All agree that his behaviour...
Just got our walk-in shower installed. Together dad & I can get mom into the shower. She cannot stand up by herself or ambulate at all anymore. The shower had a seat but to stand her up is very difficult because 1) she is afraid of falling; 2) the shower floor is slick and her feet do slid...
First of all I love my Pals. He is a wonderful caring person.
Sometimes things just get messed up. We are pretty much able to keep things on an even keel. As ALS progresses new deficiencies occur. I shower, dress and tend to all hygiene for my Pals.
Shaving is a *****. We have tried an...
I had a DPS put about a month ago. It's working well for me. But I have one stupid problem and that is keeping the plug dry at shower time. Does anyone have any simple solutions to this.
Hello everyone! I am a 22 year old male, and have been a medical mystery for about 2 years now. I have hyper-calcemia and hypo-calcuria , and 4 very small brain lesions on the left middle side of my brain. I've had symptoms of slight fatigue and muscle twitching (I'm assuming at this point the...
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Hello, first off my heart goes out to anyone suffering from this disease and I really appreciate you taking the time to help the rest of us. I'm a 31 yo male, relatively fit, and recently I began having some strange hand/wrist symptoms a few weeks ago.
It started with a twitch of the middle...