shortness of breath

  1. L

    Seeking help on my symptoms, scared and depressed

    Hello all, I am desperately seeking for help regarding my symptoms. Doctors do not seem to listen to me or take me seriously so it would be really appreciated if anyone with the knowledge of ALS symptoms could help me. I am an immigrant living in Canada, Toronto, 26 years old female...
  2. I

    How to change Bipap settings as for the disease progress?

    Dear PALS, hope you the bests. I started Bipap 1 year ago for my patient with below settings: mode: ST IPAP: 12.0 EPAP: 5.0 IBR: on Target pt Rate: 14 Trigger: high (i dont know what is this) Cycle: Med (i dont know what is this) Ti max: 2.0 sec (i dont know what is this) Ti min: 0.3 sec...
  3. A

    It's been a journey and i'm suspicious

    Hi everyone My name is Alan Rodriguez,I'm 26 years old, I'm Mexican and currently living in the country's capital. I've read the obligatory post to read before creating a thread, i do this to know your opinion and to be heard more than for my peace of mind, i hope I'm not breaking any rules...
  4. L

    Symptoms, awaiting neuro appointment

    Hello all! I have been having some strange symptoms for the last month. It all came about suddenly and I’m concerned. All started May 29th, ceased for 10 days then symptoms arose again. Symptoms: - involuntary thumb and middle finger twitch/movement (this lasted for a week and hasn’t...
  5. C

    Twitches, cogwheel motion, fatigue, breathlessness, loss of muscle mass

    Hi, I was just wondering if anyone here had experienced similar symptoms to what I have and have managed to receive a diagnosis for their condition. Approximately 3 years ago, I started noticing tremor on my left hand. I had difficulty holding my phone still to take pictures. At the same time...
  6. S

    Facial weakness and continuing bulbar symptoms post EMG

    Hello, I'm a 43 year old male that started twitching in 1999. I saw a couple of Neuros back then and had an EMG that was clean. Diagnosis was simply benign fasiculations. Fast forward to late 2013, my voice started to have this weird vibration/rattle at the end of a sentence that occurred...
  7. P

    Is this the beginning of ALS?

    This week is a particularly troubling week for me, with many distressing symptoms. First there was difficulty breathing. Monday night, after having eaten more than I needed, I started having apnea when lying down. The thing is I waited a few hours before going to bed to minimize discomfort from...
  8. C

    Symptoms persisting. Respiratory Onset?

    Hello all, some of you may remember I made a post about a month ago concerning my symptoms. That thread is now closed but I will summarize everything here. My concern is that I have been having very concerning symptoms the past 2 months and I am worried about my health. I will break down...
  9. W

    Some questions and concerns

    Hi all, First, I want to say that I have the utmost respect for the people here who are battling this awful disease and for their caregivers. I pray for a cure and peace to all of you. I think it is selfless that you give your time to a forum like this. I have been having some concerning...
  10. E

    Here for an opinion

    First, I want to thank all the contributors to this forum especially PALS/CALS. I do recognize that your time is valuable. Yet, you devote so much time to helping others (a large percentage of people that don't have anything that remotely resembles ALS) which is truly remarkable. About 10...
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