senate

  1. ZenArcher

    H.r. 1169

    H.R. 1169 was introduced to the House on February 25th and referred to the House Committee of Veterans' Affairs. This bill if passed would increase the specially adapted housing (SAH) grant from $60,000 to $180,000 and the automobile grant from $11,000 to $33,000. Below is the full text of the...
  2. ZenArcher

    Victory

    Victory! Senate Passes the ALS Registry Act A few minutes ago, the United States Senate passed the ALS Registry Act! Thanks to your outreach, we have just won a huge victory for people with ALS and their families across the country. We have made a difference! The bill now heads to the House...
  3. ZenArcher

    Hit 'em again

    To all of you that emailed your senators already, good work and thank you. I'd like to recommend that you hit them again. Senate decided they needed Friday off so the vote didn't happen. The President's request for $700 billion will most likely take up today and maybe tomorrow but it is my guess...
  4. ZenArcher

    Action Alert - For Every US citizen on this board

    Whether you have ALS, think you have ALS, found out you didn't have ALS, are not yet diagnosed, are a family member or loved one take the time to read this and then ACT. This must get done and now. Over 4300 PALS in the US have lost their battle with ALS since the idiot from Oklahoma placed a...
  5. ZenArcher

    Whiskey Tango Foxtrot

    I have to ask forgiveness up front because this post may become somewhat vocal. I read an article today online that well frankly pissed me off. I've since tried to move one but the more I think about it the angrier I get. The article I'm referring to was in the Washington Post and is titled...
  6. trying to stay positive

    Update on ALS Registry Act

    I received this from the Les Turner ALS Foundation today. I not only contacted Dick Durbin, my Senator that voted for this to thank him, but also contacted Barrack Obama who did not vote. I sent him a picture of my family & invited him to spend a few hours with my family. I told him that if...
  7. ZenArcher

    The Time Has Come to Pass the ALS Registry Act!

    The Time Has Come to Pass the ALS Registry Act! We have great news...the Senate is expected to vote on legislation that includes the ALS Registry Act as soon as this week! This is what we all have been working for. And it means that it's absolutely critical that you contact your Senators and...
  8. gbrown

    Caregiver Assistance

    To All: Please find below an email I sent to Coleen Maguire yesterday. The reply she sent me is very informative. For all you Okies, please let this senator know not to keep blocking the ALS National Register. If any of you are interested in the links she refers to, email me off line at...
  9. C

    Als Assoc. Wins Fight For Power Wheelchairs

    For everyone's information: HR 6331 LEGISLATION PASSED TODAY THROUGH THE US SENATE THAT WOULD EXCLUDE POWER WHEELCHAIRS FROM MEDICARE'S NEW COMPETITIVE BIDDING PROGRAM. THE BILL, WHICH PASSED BY A 69-30 VOTE, ALSO WOULD DELAY IMPLEMENTATION OF THE PROGRAM FOR 18 MONTHS. THIS A TREMENDOUS...
  10. ZenArcher

    Advocacy Request

    Urge Congress to Join Our Fight for a Treatment Take Action! We need your help TODAY to continue critical ALS research taking place at the Department of Defense. Senators Robert Casey (D-PA) and Elizabeth Dole (R-NC) are circulating a letter requesting the Senate Appropriations Committee...
Back
Top