senate

  1. retiredmus2010

    Senate Committee approves $6 Million

    Excellent news everyone! The Senate appropriations committee has voted to provide an additional $6 million for the ALS Registry in 2012! I am hopeful that the Senate is making ALS a priority. Our work is not done, however, The full Senate must still vote on the Dep of HHSA bill that includes...
  2. trfogey

    Send a message to the US Senate

    OK, US PALS, CALS, and friends. It's time to send a reminder to our US Senators that the ALS serial killer is still on the loose and our dedicated defenders need more resources to hunt it down and collar it Seriously, please drop a note to your state's US Senators to prod them into supporting...
  3. notme

    Got this email today

    Dear Patricia, Yesterday afternoon, the House Appropriations Committee approved $6.4 million for the ALS Research Program at the Department of Defense. Thank you to everyone who reached out to Congress to help save the program from elimination. Your outreach made a difference and helped...
  4. R

    If you are from Alaska or have friends in Alaska...

    ... ALS needs a friend in DC. Please consider a write-in vote for an important ALS advocate. Senator Lisa Murkowski actually wears the red wristband and a lot of commitment to the cause. She has worked quietly behind the scenes with her colleagues to make the legislative achievements for ALS...
  5. A

    Additional $7.5 Million for the ALS Research Program

    I thought I would share this news with you. $7.5 Million for the ALS Research Program at DOD $2.5 Million for Respite Care Dear Aleta, This weekend, the U.S. Senate appropriated an additional $7.5 million for the ALS Research Program at the Department of Defense (DOD), a 50% increase over...
  6. BethU

    Funding for ALS Registry Increased

    Just got this e-mail from ALSA. (Why can't the US go in with this with Canada, Aus, NZ and the UK and get a REAL representative database going? Anyway ... this is a good start!) ------------------------------------------------------------------------ A few minutes ago, the House of...
  7. indigosd

    House votes to increase als registry funding

    Just received this update from ALSA Advocacy! House Votes to Increase ALS Registry Funding Dear Kay Marie, A few minutes ago, the House of Representatives passed legislation that will appropriate an additional $6 million for the National ALS Registry at the Centers for Disease Control and...
  8. indigosd

    Als action alert

    This is a copy of the email that I received on 8 October 2009. Please if you have the energy, CONTACT your members of Congress and your state politicians! WE STILL NEED FUNDING for the REGISTRY! My name is Jeff Faull and I am the married father of two beautiful daughters. I was...
  9. W

    Act now for health care reform

    (sorry for the intrusion my canadian PALS) As Washington debates health care reform, I urge you to contact your house representative and senators. We need to spread the word about our medical needs (tragedies) and influence the debate. Below, I have included a copy of an email I sent. Please...
  10. J

    an email from OBAMA

    A member of this forum asked for support in contacting OBAMA with regard to ALS. Since we have an american address and pay taxes, I registered. I got an update from OBAMAS office this morning. It might be of interest to you all over there. There is a llink for anyone to join for more updates...
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