seizures

  1. L

    Have a couple of ALS symptoms and terrified

    I first want to say how sorry I am for those of you who have been diagnosed with this horrible disease and those of you who are facing possibilities of having it. This is a horrible thing and I know it is very terrifying. Even if I do NOT have this disease I want to become a supporter and do...
    • Leesaw73
    • Thread
    • age als als symptoms back cure diagnosed female health hope kids life mri muscle muscles pain problem problems reading scared seizures shaking symptoms test twitches twitching undiagnosed weakness
    • Replies: 6
    • Forum: Could this be ALS?
  2. S

    Clonus - muscle contractions

    Is clonus a common MND symptom? For those who might not know what clonus means it is: from Greek for "violent, confused motion" - a series of involuntary muscular contractions due to sudden stretching of the muscle. My husband has had clonus in both feet/ankles for a long time now...
  3. H

    Can Guillain Barre or Transverse Myelitis actually be ALS?

    A previous post brought this thought to my attention. I did not want to take away from their post and submit my own concerns regarding my mother. Therefore, I have started a separate post. My maternal great-grandmother was diagnosed with ALS many years ago. She lived with ALS for 5 years...
    • homerunbetty
    • Thread
    • als als? back bed bedridden diabetes diagnosed dying familial fell mucus reading seizures sleep swallow tongue walker
    • Replies: 2
    • Forum: Could this be ALS?
  4. BethU

    Bulbar symptoms recap

    It was either this or do the taxes. Hopefully somebody will find this useful. List of Bulbar-onset ALS symptoms over 3 years. ? means I’m not sure it’s connected to ALS or FTD. ** means it’s still continuing. These are not in accurate sequence, but generally by year. Not sure about the...
    • BethU
    • Thread
    • als als symptoms atrophy balance bipap bulbar bulbar symptoms chair choking cough assist driving dry mouth eating emotional lability exhaustion fasciculations feeding finger food foot ftd headaches heart insurance lift meds night pneumonia power power chair problem problems reading reflex respiratory respiratory failure running seizures shortness of breath sleep slurred speech speech speech therapy stupid surgery symptoms tests therapy thumb tongue tongue fasciculations twitches twitching walker weakness work wrist wrong
    • Replies: 10
    • Forum: General discussion about ALS/MND
  5. L

    New to this world ... environmental?

    My husband was diagnosed with ALS at the end of August, 2008. Since then, I've taken comfort from your posts ... your information, your honesty and your humor. I guess we've both just been lurking up until now, happy to know you are out there. In the past few months, I have noticed increasing...
    • loralie
    • Thread
    • als cramping diagnosed environmental causes fasciculations foot information muscle seizures spouses with fasics worried
    • Replies: 5
    • Forum: General discussion about ALS/MND
  6. BethU

    Seeking Wright (or wrong) Answer of EEGs

    I had an EEG (I keep spelling it EEK for some reason ... maybe when I get the report, I will know why :shock: ) yesterday. It was supposed to be a "waking/sleeping" EEG to try to find an explanation for 5 seizures I've had in the last six months, all happening when I was in deep sleep. (The...
  7. L

    My heart goes out to all of you

    I've been registered for a long time, but have never posted much. I just want to say that my heart goes out to everyone who has lost someone - recently and not so recently - to ALS. I wish I could just hug each of you! I lost my darling husband Kenny on April 29. He fought ALS for 6 1/2...
    • Lillie
    • Thread
    • als brain grace heart running seizures vent
    • Replies: 4
    • Forum: In memory of
  8. BethU

    An update

    Hi, all ... an update on my third clinic visit at UCLA yesterday (as opposed to my trial visits). My "gross" strength is still good, hasn't changed much since my first visit in June, but left leg and arm are slightly weaker. The neuro did not seem impressed by my improvement in speech and hand...
    • BethU
    • Thread
    • als arm balance bipap brain breathing burning caregiver caregiving clinic cold cramps ftd fvc improvement insurance meds night pain peg problems seizures shaking speech symptoms trial twitching update walker wheelchair
    • Replies: 24
    • Forum: General discussion about ALS/MND
  9. BethU

    Off-topic rant

    Well, it’s time for me to unload again about my husband. This will be long. Sorry. For anybody who remembers, last summer, he developed new symptoms ... collapsing suddenly two or three times a week, being unable to stand or walk (those were the days when I was dragging him around the house on...
    • BethU
    • Thread
    • back balance bed brother chair dementia hours insurance lift meals medical meds nausea pain questions rant relative risk seizures story support symptoms test tests treatment wheelchair work
    • Replies: 12
    • Forum: People with ALS (PALS)
  10. BethU

    Picking a wheelchair

    Hi, all ... I'm the PALS, but I need to get a wheelchair for my husband ASAP, and I have no idea what to look for. I assume it would be good to get something I can use down the line. Background: You don't have to read all this, as it doesn't relate to ALS. But I think my husband has MS ... his...
    • BethU
    • Thread
    • ability advice bed clinic depressed hope ideas idiot lift medical meds pain power seizures sleep stop working symptoms test tests treatments vision wheelchair wheelchairs
    • Replies: 17
    • Forum: General discussion about ALS/MND
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