secure

OMG you guys...I have to tell you that yesterday was such a bad day. I couldn't lift Ron off the lazy boy chair to position him into the commode, he kept falling and I had no strength. We managed and I could not get him off the commode. Finally we used the transfer circle and with all my...

I have just been diagnosed with ALS. I already have trouble swallowing and have a feeding tube. Am still able to walk but get weak rather quickly. Does anyone have any tips on how to secure the feeding tube when not using. Also wondering how quickly this desease progresses. Since I am 73...

My wife PALS was no longer able to support herself and began to require help to transfer her from one location/device to another. My initial solution was to simply “bear hug” her during transfer. And while this initially fulfilled some kind of “manly” thing in me, the multitude of daily...

PALS are needed in these two states. I tried to volunteer, but they had enough volunteers in VA. Very simple to do. They come to your home to take samples. You must be registered with the CDC's ALS registry to participate. CDC - Amyotrophic Lateral Sclerosis: ALS BioRegistry Contact...

Our lift doesn't work any more. You press the button on the remote, and it clicks, but nothing happens. This would seem to indicate a problem with the relay, but the clicking is coming from the battery area. All of the connections are secure, and the battery appears to be charged. We have had it...

Hiya, I'm a 21 y/o female, been having some health anxiety about ALS lately. I wouldn't call myself a hypochondriac, because I've only started to becoming more cogniscent of my body since my diagnoses with PCOS. That caught me off guard, and has made me feel really insecure about my health...

I'm not sure if any of you remember me or not, but I have been here before. I hope you all had happy holidays. When I first came here it was because I had what I thought was right side weakness. I in fact had none, but I did have pain and twitches. After quite a few tests I was diagnosed with...

My life partner of over 13 years, Michel, passed away on Friday, April 5, 2013. His first symptoms showed two years ago. His case was one of the most aggressive his neurologist had seen. But through it all, he was brave and strong and proud. We spent the last 6 months enjoying life, the summer...

So, tomorrow marks one year. Diagnosed, April 5th, 2012 @ 3:30pm. My world, and my life changed that sunny afternoon. Holy Thursday, it was. I held my husband while he sobbed. I had never seen him cry before. I wasn't much of a crier either. No reason to cry. In fact, our life together was...

Hello, I am new here and was wondering how does one choose and get into that particular trial? Can I simply try to get into.. say the one at Emory and simultaneously try to get into one that might be going on in the Mayo? Just to see if I get turned down with one that I may secure a spot with...