second opinion

  1. C

    Pending diagnosis

    Hello, My husband is 39 and was told yesterday by the neurologist after his EMG that he has a motor neuron disease but doesn't know which one yet. The neurologist told my husband that the disease could stop with just the weakness he's experiencing only in his left hand, or could get worse, he...
  2. blitzc

    First Clinic Visit Next Week-What toExpect

    I will be attending my first Clinic Visit next week. I was diagnosed in January but received a second opinion from my current doctor several weeks later. In May, I did have a follow-up visit with my doctor concerning my first three months with Radicava infusions and to check my progress. My...
  3. J

    Confirmed diagnosis on friday

    Well, got my second opinion. confirmed I have ALS. I was very happy with the doctor I saw. She was compassionate and took an hour and a half doing some tests such as reflex, strength etc. then she said the words. I’m sorry she said. She wants to do another EMG of back, left leg, left arm and...
  4. G

    My Story - input appreciated.

    Hello. I would like to start by stating my true admiration for all on this forum. You are all so courageous and inspiring. Thank you for sharing your valued thoughts and perspectives. I am very worried about having als. Here is my story. I have twitched intermittently for years. In April I...
  5. I

    Husband newly diagnosed

    Hello Everyone, we’re having a really rough day today so I decided it’s time for me to reach out. My husband got his first diagnosis 5/21/18 and a second opinion confirmed it 6/14. He started noticing weakness in his arms on one side just after Thanksgiving. It then progressed to the other...
  6. S

    I'm Hoping to help veterans with ALS

    My dad recently passed after a 2 year battle with ALS. I was his only relative, so by default became a caretaker. I spent hundreds of hours on VA benefits and my Dad's wish was for me to help others. I found PVA and DAV in my area to be of very limited help. They basically got me started and...
  7. L

    Likely ALS diagnosis, extensive analysis

    My father was diagnosed with an ALS or a very similar condition. He was treated in a third world country, which cannot pride itself with very advanced diagnostics, so I thought that it would be worth to ask for a second opinion online. I'll try to be very concise. 60 year old, male, 80kg...
  8. P

    Considering a second opinion

    Hello, Gender: Male Age: 26 Family History of ALS: None to my knowledge I've read through the sticky at the top of the page, and i'm pretty sure I don't have ALS. I've been having issues for the past 5 months and today I've just visited a neurologist who told me that I don't have ALS. The exam...
  9. V

    Newly Diagnosed Question

    My husband was recently diagnosed with ALS after a battery of tests from a referred Neurologists who suggest we get a second opinion. In the DC area we have John Hopkins, Georgetown and George Washington hospitals to choose from - all who have ALS clinics. We have appointments at both Hopkins...
  10. S

    Am I overreacting?

    Hello. I want to first say thank you for any information or insight you may be able to give me. I also wanted to say that my thoughts are with you all that have been affected by this disease. I am concerned due to a few reasons. About a week ago, I noticed something was "off" with my left foot...
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