second opinion

My sister who just turned 59 yrs. old, Jill, was diagnosed with ALS on 6/25/14 by Forbes Norris Research Center in S.F., CA. They started her on Riluzole or Rilutek. They recommended she get a stomach tube put in since she had already been having trouble swallowing this whole time as well. The...

Hi everybody, I have been seeing a neurologist for about 3 months now. These are the tests I'be had so far: 1. MRI brain, cervical, lumbar, thorax 2. EMG; upper & lower extremities, neck, lower back 3. blood work for myasthenia gravis 3. blood work for myopathy (creatine, some other names)...

Hello, I am actually posting for my husband that was just diagnosed with ALS. He was diagnosed 7 years ago but when he went for the second opinion at Emory in Atlanta, he was told that there wasn't enough changes from the muscle and nerve biopsy to rule it as ALS. Now 7 years later and here we...

Hi all, Mark here. Diagnosed on June 2, and got a second opinion from a neuromuscular specialist at University Medical Center (U of A) on the 10th. I'm 58 today, retired Air Force after 20 years of service and lucky me, spent nearly a year in Saudi Arabia during the first Gulf War (and have...

Long time reader of your boards and it's time to come out of hiding. My wife's story started in Oct 2011 when she tripped and fell face first. Trip to the ER to be checked out she was told all was well go home and rest. A month later she started complaining of not being able to move her...

So bored of this All... I'm kind of ashamed of writing here. I have looked at enough posts to understand the basic rule. If your worried go and see a neurologist. I understand the discussion about anxiety over this, and the irritation of people being paranoid and self diagnosing. I never want...

I was recently diagnosed with PLS late March of 2014. My neurologist has been very helpful in setting up a visit to the Mayo Clinic in a few weeks to confirm his diagnosis. From your experience what should my expectations be and should I accept it or go for a third opinion from, say the...

Is this the start of als? Hello all! I was hoping for some insight from those of you with experience and/or knowledge about als. I am a 25 yr old female so i know odds are in my favor, but about 2 months ago (had a baby 3 months ago) i started feeling an awkwardness in my hand no loss of...

I was recently diagnosed with ALS. My only symptoms are speech and swallowing disorders. I have had brain CAT scans and MRIs, swallowing test, carotid artery test and a larynx exam and all came up normal as well as the CPK test. Should I assume a correct diagnosis based upon one EMG that was...

Hi guys. I posted here last year since at the end of March of last year I started having widespread fasciculations. They were strongest/most constant in my calves but were also occurring in other parts of my body. I went to a neurologist, who detected the fascics but couldn't figure out what...