1. K

    Thoughts on When to Get Hospice

    My PALS and I have decided to use hospice when the time is right. He uses a Trilogy about 17 hours a day, does not want to be trached or have a PEG. He is able to eat whatever he wants (with the help of water to wash it down), he transfers from scooter to chair/commode but anything he does is...
  2. Jamesgol

    Diagnosed 12/20/2018

    I first started having symptoms 3 years ago. It started with a little left leg weakness and fatigue. My PCP said I was just getting old and that being tired was a symptom of every disease. Over the course of 3 years my left leg got weaker and weaker, and the fatigue continued. My PCP...
  3. Firefighter58

    A new scooter

    Just got a new scooter, it's called the Golden Buzz Around. Great scooter, will go approximately 10 miles on a charge at 5mph ( full speed) The big advantage of this scooter is that my wife can take it apart in 2 minuets and put it in the trunk of the car, no tools required. Reassembly is just...
  4. G

    "Right To Try" in Minnesota

    I'm hoping to get BrainStorm NurOwn stem cells. BrainStorm is hoping to get the policy in early June. So I still can play my guitar, play my drums, do yard work and ride my scooter. I can't talk to well. But I'm hoping to get NurOwn.
  5. D

    Access Unlimited Multi-Lift Transfer Lift NEW Paid $6500, selling for $4500!

    ACCESS UNLIMITED MULTI-LIFT TRANSFER LIFT FOR HONDAY ODYSSEY 2011-2017 Purchased for $6500 Never used! ********** SAVE $2,000 ************* This was purchased direct from Access Unlimited for $6,500.00 and never used. Simply put, a wonderful opportunity to own this extremely practical personal...
  6. Tedstehr

    Florida and Aruba

    We will be setting out for Florida and Aruba on Saturday. We will leave for Seattle midday and fly from SEA to Orlando Sunday morning. Two days in Walt Disney World and then to Miami. We fly on Friday AM to Aruba where we meet up with my son Jeremy who has been in New Zealand since January. We...
  7. Bestfriends14

    A question for PALS

    Hello, My husband has just ended his clinical trial (he dropped out March 28th) for Pimozide. Apparently, he's not progressed in his right leg or arm since last September but has only slightly in his left leg, which is his drop foot leg. However, I am finding it harder and harder to believe...
  8. A


    Just wanted to post some good news. Foot is healing and I should be out of boot in two weeks! Can't wait till back in sneakers. It has been very difficult, but used a knee scooter with basket to get around house. Taking husband to dentist and arranging coverage so I could go to ortho had...
  9. G

    PWC on bad sidewalks

    I have an OT coming in a few days to discuss getting a PWC or scooter from the ALS loan closet. I currently use a rollator indoors and out but would like some freedom to get to the nearest bus stop (0.5 km) or our local coffee shop (1 km). I'm leaning towards a PWC, since scooters seem so...
  10. M

    Feeling guilty.

    Hi. I'm new to this forum. My husband was diagnosed with ALS in Nov. And I have watched him become almost mean complaining about the smallest things and just impatient with me. I come back at him and becoming so angry. He is in a scooter and starting to become weaker in hands and arms. He use to...