So first off, I’m a male of 21yo. I’ve been healthy my whole life up until 2017, I was trying to lose weight from 190 and went down to 115 as of now, I was trying to lose weight but now I can’t seem to keep weight on. So about a month ago I started to develop bad back pain in my lower back, at...
Just rambling. Today was 3 weeks since Ferd died. I've been trying to get the thank you cards done and have been in tears all weekend. I got the online stuff finished but the cards are still waiting, Not sure what it is about them that is so hard but... Getting his things together and doing the...
angry
anxiety
back
breathing
brother
caregiver
cost
coughing
cry
crying
diagnosed
dying
eating
eyes
family
grief
hearing
life
pain
peg
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sleep
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video
Well, I had a pretty epic meltdown this morning. Nothing all that significant happened, but boy did the flood gates open.
DH had just called me to get him up. He asked for a good morning kiss. As I layed my head on his chest for a hug, I just completely lost it. Sobbing tears. The kind...
I went to my first ALS Assoc CALS meeting and everyone went around the room describing their PALS current situation and when it started, how it started, details, etc., in quite length....and I was unfortunately last on this circle of sharing (first time, hate sharing anything usually in public...
Hi,
First of all I am very sorry that you are experiencing or having contact with this terrible disease. I would be very grateful for any help and advice concering my symptoms. I will try to post all of my symptoms and worries down below as clearly as possible but I warn you it will be a long...
abdomen
als
arm
bfs
burning
clinical
cry
dementia
diagnosis
emg
family history
fasciculations
hope
mnd
muscle
muscle burning
neurologist
pain
sad
sleep
symptoms
tiredness
tremor
vitamin d
weakness
worries
wrong
Hey guys,
first of all, I'm very sorry for all your struggles with ALS and I do not wish anyone to have this terrible disease.
About me, I am very scared of ALS for like 3 weeks now. It all started about 9 months ago.
I've started having very strong coughing issues while eating/ even drinking...
advice
als
bulbar
bulbar pals
depressed
early
emg
food
information
medicine
mri
neurologist
neurology
night
onset
pain
sad
scared
scared of als
shaking
shoulder
stiffness
swallowing
swallowing issues
symptoms
tests
twitch
twitches
twitching
wanted
weakness
worries
My progression seems to have sped up these last few weeks and is causing havoc with my left hand function and my soft palate function, possibly also my breathing. This is making it hard for me to continue playing my bassoon, which has been my passion and joy for the past 44 years. I can...
It's been 5 and a half weeks since Mom passed and it has been such a whirlwind, but I've been thinking about the folks here with such gratitude.
(I've typed five summaries of these last weeks and keep deleting them. Suffice it to say that they've been busy and good and sad and maybe I'm...
I hope this post is appropriate for this section, but I wanted to briefly share a personal reflection of my experience during my father's battle with ALS and what I hold dearest to my heart after losing him. The topic of ALS can be a sad discussion, it is sad. But, as odd as it sounds, after I...
my last thread was closed
I have been going round and round with notorious twitches and feet achy weirdness for a while below is time lin
nov16 bilateral feet feel strange
jan 17 emg diagnosed with neuropathy with normal ncv
may17 emg diagnosed with sensimotor poloneurapthy with normal ncv
aug...
als
anxiety
back
bfs
bulbar
diagnosed
emg
fasciculations
ice
life
mucus
neurologist
onset
problem
research
sad
scared
swallow
swallowing
symptom
test
tongue
twitches
weakness