How do you get out of your own head? I was diagnosed a year ago and no longer walk...now I'm losing my left arm strength and assume my right will be going soon. For the most part I have been positive but I can't seem to shake the anxiety/fear/frustration etc.
I am 50 and single and have moved...
Since my husband's diagnosis, I have noticed that my knees, feet and hands have really started to bother me. I realize that it probably is because I had to start to do all the heavy work, and now do a lot of lifting and pulling with my hands. Also since I am in my 50's (shhh don't tell anyone)...
On Decemberb27, my dear husband lost his battle to ALS. Heaven gained another beautiful soul. I was not prepared for this big hole I have in my heart and soul. I cannot tell you how much each one of you helped and how important this forum was to us. It is such a beautiful family to have.
I wanted to blog about my dad and his recent surgery to get a trach and begin full time invasive ventilation. Prior to surgery he was on BiPAP 22+ hours a day with good use of his arms and hands, able to walk short distances with a cane or walker. Breathing was his biggest problem and he went...
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tracheostomy
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I'm so sad, I don't know what to do with myself. I lost my best friend, my Mom, on Christmas Day. She was only diagnosed this past September, got a feeding tube in November and it was downhill from there. My once beautiful, sweet, independent Mom struggled so much these last few weeks that I...
Not sure if this is the correct place for this thread. My mom has been gone for almost three months now. I've been so emotional these past three months. I get so angry so easily and I get hurt or upset and cry so easily. I started a job just after my mom passed. I didn't want anyone to know...
I know I should have posted this in the "Other" Forum but I didn't want to disturb Alone&Afraids beautiful thread.
Kinda funny and kinda sad how you realize certain things. With some friends a few days ago and one of them mentioned about going bowling. I liked the idea then quietly I realized...
I am bringing the sad news that our friend Brad (ESDUCKHUNTER) passed away Thanksgiving evening. He was at peace and comfortable. He was a gentle giant of a man and was very dear to me as a friend, as he was to all who knew him. He will be greatly missed. Please pray for his wife and two...