sad

  1. K

    Similar stories

    Hi everyone, thanks for taking the time to read. I posted a couple weeks ago about my mom who is progressing rapidly. She is continuing to progress after her diagnosis on August 24. Most of her words are not audible now and she is getting weaker with transfers from bed to chair etc and is...
  2. A

    High concerns, awaiting neuro appointment

    Hello everyone, First of all, I would like to mention I took into account the "Read before posting" thread and also, to thank anybody in advance that might read or reply to my message. 25 years old, male, caucasian: 1) A few years ago (maybe 2-3) I noticed a weird tremor in my hand when...
  3. A

    A year ago

    Tomorrow, will be one year since my husband passed. This days are hitting me so hard because I am reliving in my mind the nightmare. He was agonizing for almost 10 days and we couldn't help. Then I lost my father to cancer and my dog the same day in April.... I am so scared all the time, I have...
  4. J

    A Sad Day

    Those of you who have kids probably remember at some point jokingly saying "I can't remember life before kids." Today, as I was loading my DH in the sling and moving him in the Hoyer to the toilet, it hit me like a load if bricks - "I can't remember life before this wretched disease." And...
  5. T

    The passing of my father

    This is to my father who passed away on July 25, 2018 at he the age of 52 from ALS. I am sad to say the I have not seen my dad in over 2 years and will surely miss him. The last time I talked to him was last year and the last thing I remember talking to him about was did you get snow where he...
  6. M

    Afraid of dying / existential stuff

    Hi. Lately (few months) I have been feeling depressed and anxious. I am afraid of dying. Not the dying itself, but the existential questions around it. Was my life useful? Have I been inspirational, funny, social, intelligent...good enough? Will the not forget me? I keep getting stressed...
  7. B

    Thinking of Others

    Receiving confirmation of ALS creates feelings of shock, fear (or terror) and great sadness. It's like standing in a dim hallway staring into a pitch black room. We need to enter, but fearing the anticipated, unknown potential dangers lurking inside, keeps us rooted in place. The longer we...
  8. I

    Husband newly diagnosed

    Hello Everyone, we’re having a really rough day today so I decided it’s time for me to reach out. My husband got his first diagnosis 5/21/18 and a second opinion confirmed it 6/14. He started noticing weakness in his arms on one side just after Thanksgiving. It then progressed to the other...
  9. T

    My mother's mental state... she is so cruel.

    My mother was diagnosed last year. The majority of her body has succumbed to ALS. She can still speak, move her left arm, and her neck. Over the past few weeks, her mental state has changed. She has always been someone who speaks her mind, and in some cases - should not - but rarely to...
  10. N

    Hello from Greece.

    I really dont know how to begin what to write. My mum was diagnosed wiith ALS in April 2018 after 4 months of tests and visits to every doctor there is. Finally she was diagnosed in a University hospital. We are a veru close family. 5 kids 9 grandkids. We are in a state of shock. Mum was an...
Top