sad

I've been putting off posting this as long as I could, just holding on to any hope of a misdiagnosis but after my third clinic visit yesterday, it's time to completely accept the fact that I have ALS. I've been lurking on the forums since my original post on DIHALS in May when I first heard...

Hi all. Up front thank you to everyone who may read this and reply - I do so appreciate your feedback. I am historically a very active 37 year old female. - walk everyday, long hikes on weekends (18 plus miles with camping gear), snowshoeing, biking, horseback riding, even for career I am in...

Hello Everyone. First off, I spelled "Anxiety" wrong, and didn't realize it until after my profile was created. But you get the picture. I just turned 30 years old last week (Sad to see my twenties go, but excited about the new experiences my thirties will bring). I have read all information...

Hello! First, my respect to all of you people that have ALS and this is maybe very stupid of me, but I must ask. Okay, so in past 2.5-3 weeks I have everyday twitching in left arm, left thumb, right arm, eyebrow, left and right leg (left and right legs are the one that twitching is the most)...

My husband was diagnosed in September. We are awaiting a second opinion from the VA but still waiting for an appointment. In June we traded both our Harley's in on a trike because my husband couldn't hold up the bike with his legs. The trike was supposed to give him more riding time but now...

Hello All, Updated my status on here today, my husband was diagnosed on 9/24/15. Life feels so different. Nothing will ever be the same. I have a wonderful FT job that I have been at for over 11 years, and everyone has been really supportive. But, I did decide to get a PT job for roughly...

My father can no longer speak and has been writing notes on a board. Yesterday hospice said it could be a day or a week but he his steadily declining. Every time he writes something I'm terrified it may be his "last words". A few minutes ago he rang his bell and when I went he asked for the...

So i haven't been out the house by myself since June 2015 so the first time I get a chance to get out the house on my own why 2 of my PALS kids come over to the house with the brother, neice, sister and son on the phone without my knowledge to question him about freakin life insurance! UGHHHHHH...

I don't know why I'm on here. My husband was diagnosed last Tuesday and doesn't want to discuss ALS at all. I feel so lost and mostly sad. I love him so much and we have three small children ages 7,5,2. I've always been a stay at home mother but I recently starting working. To think about our...

I can't believe that I am posting in this section...my beautiful husband, Lonny, died suddenly this morning at 11:10 am. he seemed to rally last week but then on Saturday started feeling weak again. Sunday was a bad day--no crisis but so weak and could not enjoy a family dinner that we had...