Well, hard to believe it is almost 5 months since my sweet husband died. I still hate ALS just as much. don't really think about it too much though...don't really want to. I hate to look at pictures of him from the last few months of his life. I can't believe that I didn't see (at the time)...
My mother is single and I am her only child. She lives in the southwest and I live on the east coast and travel every month or two to Africa for my job, which I love. First, a little bit about me. My job is at a prestigious organization and I just received a promotion, and may soon be offered a...
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I'm 43. And right after having my baby 15 months ago I noticed some light twitching. Cramps. Anxiety. Then I noticed extreme fatigue . Months later I found out I had low iron and vitamin d. I have been to every doctor every kind. A couple months ago my vision was blurred , store lighting gave me...
Good afternoon everyone,
I was diagnosed by ALS specialist at Mayo Clinic here in Jacksonville just after Xmas, I have limb onset ALS. I am 28 years old and have no family history, although my grandma did have dementia unkown if it was FTD or not.
Symptoms started around 7-8 months ago or...
my older daughter was in town to visit her mother. Whenever she comes to town she gives me an hour then leaves.
Well she gave me two one hour windows, by text, and I texted back saying that since this would probably be our last visit, I'd like a little more time just to reminisce and see her.
I...
Hello all,
After reading the sticky posts I think it's worth acknowledging that they do address some of my concerns. I'm posting because I experience intense, chronic anxiety and hope that sharing will help me leave behind some of the compulsive forum-reading and symptom-googling.
I am 23 and...
I am sad to said that my brother who I went to visit in August died . It was very unexpected as he was doing as well as he could. He was found unresponsive and did not recover.
I am so thankful that I did get to see him this year. I was planning on seeing him again before the end of the...
I wanted to share this to inform you that there are things far worse than ALS alone. I was diagnosed two years ago; I am 31 years old now. Currently, I cannot use either my arms or my legs in a useful way, controlling my pc using a head tracker.
I met my wife ten years ago when we were both...
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27 male:
Been reading all your forum topics for awhile since I started having issues (August 2015). I have a brain injury so sorry if I explain in a mess.
To start
* got gardasil 1 shot gained a positive ANA and made my fibromalgia get worse
*now am near skin and bone no muscle in forearm (have...
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