Hi everyone,
Heading into the 4 month mark since my dad's passing. Every day there is still something that stirs a memory and causes sadness but the anxiety, sleeplessness and depression are slowly going away. There seem to be more good days between the bad ones and with spring around the...
I was deeply rocked by Steve's passing. There is comfort in the thought that he no longer has to struggle with this terrible disease.
Gooseberry has been a "ROCK" in our community for a long time. I hope she will stick around and let us help her with her grief and sadness.
I wish nothing but...
Steve fell today and did not regain consciousness. I am so sad and shocked. Glad he can be free of this disease and watch over us. He wanted to be able to take care of us...
Hi, my name is Brittany Hyder. I am 14 years old. I have 2 sisters and 1 brother. I have 3 nieces and 3 nephews a long with a niece on the way. I have a mother. Most importantly though, I have a father. Most people would expect me to say had due to he has passed but I do not think of him as...
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catheter
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Hello everyone!
I'm scared. I've done a lot of reading on this site, but hardly any posting.
Here is my Mom's story... My Mom is 65 years old, and was diagnosed in 2013 with ALS. It all started by showing some difficulty getting dressed, then a few months after her legs, trouble walking etc...
Hi Everyone,
Although I have visited this forum from time to time, this is actually my first posting but I hope the information that we want to share will also be of help to other PALS and CALS out there:
But first I thought I would start off by giving you some background on our story so you...
Hi, I'm not quite sure how to start this post because I'm not quite sure exactly what I need. I'm going to do my best and hope that some of you can offer me some guidance and support.
My dad was very recently diagnosed with ALS. My dad is my person and this has been the hardest thing I've ever...
All of you are very smart and I am not sure how I should approach my neuromuscular doctor. We are very disappointed in the clinic we are using. The first major problem happened in November after a clinic visit in October there was talk of a muscle biopsy the nurse called me and asked me to come...
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cure
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information
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mri
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muscle biopsy
muscle wasting
physical therapy
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treatment
Hi everyone,
I am newly diagnosed (12-29-15) with ALS. Since my dx, I've been devastated.
My mom passed away in August and I was in a pretty deep depression over that when I got my dx a couple month later. I feel like I was hit over the head with a sledgehammer, and that wasn't enough so I...
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breathing
dementia
depression
disability
dry mouth
emg
heart
lyme
lyme disease
memorial
mri
myasthenia gravis
neurologist
newly diagnosed
sad
second opinion
speech
story
support
swallowing
test
weakness
wrong
Hi folks - appreciate your thoughts or experiences on how you managed this... we can't be the first ones feeling this...
PALS notices something - legs "feel weird" or a close call that wasn't a fall.
PALS tells CALS. Gotta share the information right? This is what's going on.
CALS hits the...