LOS ANGELES–An experimental drug that regulates inflammation and showed a strong signal in a pilot study in patients with amyotrophic lateral sclerosis (ALS) failed to...
Haven't posted in a while, just living life. My husband continues on his slower to average progression. He is extremely thin, but walks, talks and drives (all barely). No major assistance mechaisms have been entertained or put into play or desired at this time. He is a "don't want...
So we were awarded benefits for hubby. Now we can't get a frickin' VA appointment. We want to go to a VA clinic closer to our house so we don't have to go to downtown Charleston and mess with all the traffic, not to mention lack of parking space. The VA provided us the phone numbers to call...
Hello. I have been reading on this site for weeks. I have been very anxious about my symptoms, but just today experienced something that has me very panicked. I am hoping someone can read this and let me know what they think.
Brief background - starting twitching late October 15. EMG done...
We have had 4 calls this morning from different VA entities. One being the neurologist himself. He told us he was giving us his second opinion without making my husband go through all the tests again, based on the studies he has been able to obtain. Another call from Benefits and a call from...
I wasn't sure if I should post this under ALS research or where but I don't think it qualifies as "research". If there is anyone out there who has done any research on Robert Morse's fruit diet and herbal supplements as well as his claims to be able to successfully treat all forms of...
The ALS Association Announces Initial Commitment of $21.7 Million from Ice Bucket Challenge Donations to Expedite Search for Treatments and a Cure for ALS
Additional $12.5 Million in Matching Gifts Secured Bring Total Commitment to $34.2 million
Washington, D.C. (October 2, 2014)—After the...
quality of life
Anyone see this or try it? Apparently Mass general thinks this is one of the more promising candidates.
Mexiletine - channeling ALS?
Posted by author Michelle Pflumm, Ph.D.
clock February 5, 2013
cortical hyperexcitability sodium channel ALS MND
Calming ALS nerves Mexiletine may help...
Note: Summit in Central Time zone (New Orleans).
Day 1 https://www3.gotomeeting.com/register/740867726
Day 2 https://www3.gotomeeting.com/register/505585422
Round Table 1
Disease Mechanisms for ALS
Goal of Session: Highlight potential mechanisms in ALS, are they...