robert

  1. R

    NP001 Neuraltus

    https://journals.lww.com/neurotodayonline/blog/NeurologyTodayConferenceReportersAANAnnualMeeting/Pages/post.aspx?PostID=65 LOS ANGELES–An experimental drug that regulates inflammation and showed a strong signal in a pilot study in patients with amyotrophic lateral sclerosis (ALS) failed to...
  2. L

    Stuck between a rock and a hard place

    Hi all, Haven't posted in a while, just living life. My husband continues on his slower to average progression. He is extremely thin, but walks, talks and drives (all barely). No major assistance mechaisms have been entertained or put into play or desired at this time. He is a "don't want...
  3. S

    Trying to Get a VA Appointment

    So we were awarded benefits for hubby. Now we can't get a frickin' VA appointment. We want to go to a VA clinic closer to our house so we don't have to go to downtown Charleston and mess with all the traffic, not to mention lack of parking space. The VA provided us the phone numbers to call...
  4. A

    Bulbar concerns

    Hello. I have been reading on this site for weeks. I have been very anxious about my symptoms, but just today experienced something that has me very panicked. I am hoping someone can read this and let me know what they think. Brief background - starting twitching late October 15. EMG done...
  5. Michellesews

    Really REALLY GOOD NEWS!

    We have had 4 calls this morning from different VA entities. One being the neurologist himself. He told us he was giving us his second opinion without making my husband go through all the tests again, based on the studies he has been able to obtain. Another call from Benefits and a call from...
  6. gooseberry

    Robert mcdonalds contact info

    Can anyone provide his contact info? Recently it was within a thread but I cant locate it. Thanks.
  7. B

    Robert Morse

    I wasn't sure if I should post this under ALS research or where but I don't think it qualifies as "research". If there is anyone out there who has done any research on Robert Morse's fruit diet and herbal supplements as well as his claims to be able to successfully treat all forms of...
  8. F

    Initial Commitment of $21.7 Million from Ice Bucket Challenge

    The ALS Association Announces Initial Commitment of $21.7 Million from Ice Bucket Challenge Donations to Expedite Search for Treatments and a Cure for ALS Additional $12.5 Million in Matching Gifts Secured Bring Total Commitment to $34.2 million Washington, D.C. (October 2, 2014)—After the...
  9. N

    Mexilitene

    Anyone see this or try it? Apparently Mass general thinks this is one of the more promising candidates. Mexiletine - channeling ALS? Posted by author Michelle Pflumm, Ph.D. clock February 5, 2013 cortical hyperexcitability sodium channel ALS MND Calming ALS nerves Mexiletine may help...
  10. lgelb

    Webcast links for Gleason Summit 6/27-28

    Note: Summit in Central Time zone (New Orleans). Day 1 https://www3.gotomeeting.com/register/740867726 Day 2 https://www3.gotomeeting.com/register/505585422 GLEASON SUMMIT Round Table 1 Disease Mechanisms for ALS Goal of Session: Highlight potential mechanisms in ALS, are they...
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