risk

My PALS (my mom) was a smoker when she was diagnosed in July 2014 with motor onset ALS. As the decrease in her ability to use her arms and hands outpaced the decrease in her lung function, her ability to enjoy her daily cigarettes became compromised only by her ability to lift the cigarette to...

In May 2016, after a series of falls and visits to many doctors, my mother was diagnosed with ALS. I've been lurking here, scared to come out and say anything, touched by so many stories here and by the support you all offer one another. I have benefitted indirectly when I was feeling quite...

Looking for general advice. Here is my history: My maternal grandmother had dementia/Alzheimer's (that's all I really know) and died in her 80s. My mother had ALS. Onset was in her mid to late 40s and she died at 55 in February this year. She only has one brother (67, living) with no history...

I do not come out on either side of the suicide or physician-assisted suicide issue, but I do staunchly support the right of PALS to be fully informed about their prognosis and treatment options. Indeed, in every debate concerning physician assisted suicide, all sides agree that the patient...

I am curious if any of you have been obsessed with the presidential race. I have been, probably because I spend so much time on my ass watching TV. It really makes no sense to me as why I have been following the race so closely. My future looks bleak, perhaps it is for my kids and grand kids...

Okay firstly I am sorry to whine in here, especially when alot of you are fighting immense battles and im sure it can be easy to lose patience with someone like me. I, like many posting in this section have spent hours trailing the net only to be lead to this site because of my symptoms. I...

In a very odd coincidence, a casual friend of mine is also a CALS. Her then fiance was diagnosed with ALS is November of 2013 after a 9 month long diagnostic process. Given a lot of his symptoms and that he is a vet and over 50 white male (higher risk groups all around per our Dr anyway) I am...

I think sometimes people are not sure or have different ideas. Aside from the rule that DIHALS stay in DIHALS it can be confusing and there are not hard and fast rules. Some categories are pretty clear like in Memoriam. Others not so much. For most ALS issues if you are looking for...

I am spending it in the hospital. Felt so awful last night I went to the ED where they found 4! problems ( none related to ALS) the doctor said any one of the 4 could account for feeling generally horrible. All are probably treatable though they are still doing tests. So MND is on the back...

Project MinE is starting to give up the secrets of ALS. http://www.kcl.ac.uk/ioppn/news/records/2016/July/New-research-identifies-novel-genes-linked-to-motor-neuron-disease.aspx