risk

  1. R

    Question Regarding FALS

    Hello, I am new to this forum and my mother in law has been diagnosed with FALS (we do not know what gene yet). She has 6 siblings, 3 of which were diagnosed with ALS in the past in their late 50's to mid 60's. My mother in laws mother is in her 80's and DOES NOT have ALS, she has also...
  2. M

    Clarification on Disability

    Hi all, I'm hoping someone can point me in the right direction here. I turned in my resignation at work, however, they know my situation and have put me on FMLA/short term disability instead. It will last for 12 weeks and allows me to still receive some income and also keep my current...
  3. S

    Concerned/Worried about ALS

    Hello, First I want to thank everyone for their time to even reading this post. I can only imagine how annoying/frustrating it must be to deal with people like me. I guess I'll start with a background: I am a 20 yr old male (I know a bit young and I have an incredibly small chance) who is a...
  4. BlsdMama

    Dx'd PLS - headed into Clinic

    So, next week is my first appointment in the ALS Clinic. Any idea what to expect/see? I don't think this is headed anywhere good. My last EMG came back with no denervation but I definitely have a muscle in my right calf that is flaccid. It is 1.5" smaller than the left side. My...
  5. swalker

    Root Canal

    We just returned from our four-week long spring trip to Yellowstone. We stayed in the Madison campground (in our trailer) for 29 nights. It was a wonderful trip and I will write a trip report for it soon. One adventure we did not expect was the need for me to have an emergency root canal. I...
  6. bkite

    True Love

    One of the great purposes of true love is to help each other in turbulent, challenging times. No one ought to have to face such trials alone. We can endure almost anything if we have someone at our side who truly loves us, who is easing the burden and lightening the load. In this regard...
  7. W

    Genetics of ALS/C9orf72

    Hi, I should begin this by saying that, yes, I am very much an anxious person. That being said, I'm really concerned/confused by some of the genetics data I received in my promethease report (tested by 23andme), and was wondering if anyone more familiar with the studies and genetics behind ALS...
  8. A

    Preventing fals from kicking in?

    Hi everyone! I am Anna and I am 26years old from Sweden. I have recently lost my mom to Als and know that we have fals in our family. I have not done the test since it can only confirm if you have the desease but not that you don't. But I have read a lot about what might trigger/cause ALS and I...
  9. Kristina1

    talk to me about aspiration

    Sorry for all the noob posts. Talk to me about my aspiration, how dangerous is it, and is there anything (like a medication) that could reduce how often it happens? I aspirate on liquids constantly. Basically every time I drink anything, I aspirate at least once, usually more like 3x. Often...
  10. N

    Advice Needed - Catheters

    Hi All, As most of you know we have been at this for a very long time. You may have been told that ALS will not affect your bladder/bowels. That may be the case if your PALS goes quickly, but if you choose to vent and they stick around longer than the suggested time frame, you may end up...
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