risk

Hi everyone. I have read through so many threads before joining and I think this board is a wealth of knowledge and a breath of fresh air from all of the scary stuff on google. I’d love it if you could offer advice on my symptoms, which seem a bit quirky to me. Any feedback is greatly...

Hello everyone, I 'm french, my father died of als in 2015, he had done genetic testing but the results went after his death and then nobody told us anything. We all assume that it was sporadic. Then, in 2016 my sister went under a IVF procedure and needed the results, bingo: c9orf72. At this...

Heard nuedexta or Dextromethorphan.can ease swallowing difficulties and speech problem. My Dad (an ALS patient) apart from swallowing and speech problem has Thick Mucus problem for which he takes cough syrup...(Expectorant) to make mucus thin so it can be easily spit out. Is...

Hi, My husband has the C9orf72 gene mutation and so my children are at risk. They don't want to know. My question is this, Do I tell the family? There are sibliings, cousins, niece's and nephews also at risk and totally unaware of this. They know my husband has bvftd but not that it is...

Hello, I am my mom's caregiver. She was diagnosed in 2012 and is now at this point fully disabled. We used to be able to communicate when she could use her eyes, but that was over a year ago. Unfortunately she can't close her left eye at all and she wears protective goggles and ointment 24/7...

Firstly I want to thank you all in advance for taking the time and effort to read this post I know time and effort are so incredibly valuable to PALS/CALS. I have taken the time to read the sticky’s and understand that I fall into the lowest possible risk group. To make this short I have...

https://www.alsforums.com/forum/do-i-have-als-als/41324-just-need-relief.html The above thread is my original thread, which has since been closed. Hi, I posted about two months ago with concerns that I had re: twitching and other ailments that were not indicative of anything worrisome. I saw...

This is long, please bare with me So i have been searching these forums for around 3 months now. I was reluctant to do so because of all the responses people usually get on here like " you dont have ALS" " stop asking Dr Google." And honestly even while reading some of those posts i thought to...

My 80 year old mother in law is now entering what we believe are the final stages of the disease. She is almost completely paralyzed from the neck down and needs the bipap 24 hours a day. No trach or stomach tube. Her voice is relatively strong, however, and we have done the maximum to give...

Darwin goes looking for a museum