risk

  1. J

    Another Progression Question

    I realize that everyone has a different progression and what not, but I just wondered if anyone could help. My mom has had ALS for ten years now, and while she's been "stable", as stable as one can be when one's health is constantly deteriorating, the progression has always been slow...
  2. B

    "The Beast"

    When will the Hurt end? Over the past year I have been keeping up with the lives of many ALS victims I have been encouraged and saddened by many experiences that I been exposed to — It is now time for me to share my story – I hope it can help encourage, prepare or comfort someone during their...
  3. S

    feeding tube questions

    My dad had a follow up with the ALS team yesterday, and one of the topics that was discussed was a feeding tube. Dad's breathing muscles are weaking and if was to have a tube , sooner or later would be preferable. he is still swallowing ok, but needs ++ assistance to eat. Dad is not sure...
  4. irismarie

    head trauma research

    just been reading that head trauma increases the risk of getting ALS. So the professional football coonection may be less about pesticides than heading the ball all the time. I DID have a head injury requiring hospitalisation once? How many more here did, too, I wonder?
  5. V

    Everything You Need To Know About Caring For Pressure Sores

    Living with pressure sores is never an enjoyable experience. If you are at risk of developing them, or you are taking care of someone who might be at risk, get informed about pressure sores to avoid developing these unpleasant injuries. This guide will tell you the best ways to prevent and care...
  6. A

    vent questions

    I may be going for tracheotomy and the ventilator next week. the bipap that I'm using gets unplugged rather easily -- both the electrical power and the air hosing -- I am hoping the ventilator will be much more robust. I've got some international traveling that I would like to do. I want to...
  7. shelleynshaggy

    What a day.. What a difference....

    Well, first ALS Clinic appt has come & gone. Main change - NO MORE DRIVING. Was not expecting that yet. But with decreased reaction times, increased spacisity in limbs (especially right side) and increase in FTS symptoms they think it is to much of a risk to let him drive. Swallowing reflex...
  8. H

    No familial ALS here!

    Wow-what a day yesterday was. In previous posts, I mentioned that my father was diagnosed with ALS in August 2009. His brother passed away in Nov; my uncle had other medical problems, including ALS, but died from heart complications, as we were told. My dad had some genetic testing done about 6...
  9. B

    New Year = PEG

    Wish us luck! Husband and I are going to Emory on the 8th for his PEG insertion. Hoping there will be no "funny" stories I will have to tell you! Sigh... :-| Swallow test is on the 5th to determine aspiration risk. He will not be happy if told to stop everything by mouth.
  10. C

    This sounds interesting.

    Just saw this: Neurotoxic heavy metal can slow the progression of Lou Gehrig's disease 1. December 2009 00:36 New discoveries have been made about how an elevated level of lead, which is a neurotoxic heavy metal, can slow the progression of amyotrophic lateral sclerosis, or Lou Gehrig's...
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