rilutek

  1. A

    Newly Precisely Diagnosed

    Hello from Turkey, My mother diagnosed last week as ALS patient. In July 2015 first diagnose was MND (motor neuron disease). Since that moment, she has taken Rilutek. At beginning of this April, a blood test was done (westernblot). And the neurologist said she has 99% ALS. She has a weakness...
    • adincyurek
    • Thread
    • als diagnose diagnosed mnd motor neuron disease muscles neurologist rilutek test turkey weakness wes
    • Replies: 5
    • Forum: Newly diagnosed
  2. C

    B12 Methylcobalamin Injections 25 mg daily

    Wondering if anyone has been taking Methylcobalamin injections and what is there experience with it, cost, effectiveness? I have a prescription from neuro but have not had it filled yet. One "sterile compounding" pharmacy told me $1500 a month, another told me $300 a month and still waiting on...
  3. K

    Newly Diagnosed (Bulbar Onset)

    Hi all, I'm Katy As much as I love new groups, I really wish this is one I didn't have to become a member of. No offense to all you great people. After about a year or so of slurred speech and my voice being reduced to a hoarse whisper, my GP sending me to a neurologist and months of testing...
    • Katy Sunshine
    • Thread
    • ability als back bulbar bulbar onset choking cramping decline disability emg hours muscle neurologist newly diagnosed onset problem rilutek slurred speech speech support swallow symptoms tests tremor vision wheelchair
    • Replies: 34
    • Forum: Newly diagnosed
  4. F

    Neudexta

    Hi everyone, I just posted my story on "newly diagnosed ". I am wondering if anyone has tried Neudexta and If so, what has your experience been? I currently am taking Rilutek and Zoloft. My neurologist prescribed the Neudexta (for speech and swallowing issues), but with hesitation due to...
    • Firefly
    • Thread
    • diagnosed neudexta neurologist newly diagnosed rilutek speech story swallowing swallowing issues
    • Replies: 6
    • Forum: Newly diagnosed
  5. K

    Seeking to speak with ALS patients and/or caregivers re: potential new ALS product

    Hello, I work for Triangle Insights Group, a strategy consulting firm focused on the pharmaceutical and life science industry. We are currently working with a company that is developing a product to treat ALS patients. We are looking for ALS patients and/or their caregivers who might be...
  6. C

    Got the dreaded news...

    Hello, I posted on here a month or so ago under the "do I have ALS" section. Well I'm back as a full fledged member, I guess, I got my ALS diagnosis one week ago. I had the nerve conduction study January 18th and the neurologist told me immediately when he was finished. Although he said...
    • CarolSue
    • Thread
    • als arm back chair choking clinic cramps diagnosis do i have als early fell female info muscle muscle twitching neurologist onset progression reading research rilutek support symptoms test tests twitches twitching
    • Replies: 20
    • Forum: Newly diagnosed
  7. M

    Rilutek

    May seem to be a silly question but how long does it take Rilutek to begin working? Is it systemic and have to build up in your system? Just interested!
  8. B

    Riluzole and Medicare Part D

    Need some help. I'm going off my wife's BCBS plan in January and moving to 100% Medicare with a Plan F supplement. I have been shopping for a stand alone part d drug plan and every one I've looked at in WV considers Riluzole a "preferred brand" drug and puts in in a tier 4 to 6 with a hefty...
  9. Vincent

    Energy Drinks for Fatigue

    I am guessing this has probably been discussed before, but is it ok to use energy drinks while taking rilutek? I am having huge issues with staying awake during the day and have started using energy drinks. They work but I do remember something about caffine and rilutek not being good for you...
  10. S

    Riluzole

    Is anyone still taking Riluzole/Rilutek? Pros/cons, anything will help. I'm considering stopping it.
Back
Top