rilutek

Just a reminder that throughout the month of June, CVS has the campaign for donations towards research for ALS. Be sure to look for it if you go. If you recall, last year I was brought to tears as I pleaded with the salesperson to be sure to ask every customer if they would like to make a...

i dont know but i felt the need to bring this up so i can get some laughs or humer out of my study .do you realize the only drug found to help slow the progression of als is rilutek approved by the fda. does anyone know anything about the fda .well there able to lie on there vitamins they say...

Well, S went out for a drink with friends so I put myself to bed. This is one of the hardest things for me to do and leaves me wheezing and exhausted. However managed it. But no chance of sleep as my feet were sooooooo cold they were painful. Made big decision to get up again to make hot water...

Well we met with hospice last week. Definitely lots of emotions gearing up to our initial meeting. We had tons of questions on what hospice would mean for our family. Our biggest concern is not feeling in control because Hospice takes over as a sort of case manager. We will still have our same...

i have been on it for10 months and hear it may prolong your life for a few months is this drug really worth that.it puts a strain on the liver very bad.wouldnt it be better to take pure creatine ive done some research on it and it suppose to benifit those with als what do you all think

With thee bunch of letters that the specialist from Toulouse gave me I went to octor today (newish - seen him 3 times and not impressed) Had just started saying that the ALS had been confirmed when he got a private phone call and was all happy and went out of the room to continue the...

At our last ALS center visit (aka doom and gloom center) the word hospice was brought up. Now that my hubby's vital capacity is 40 % he qualifies for hospice. We have been resistant because my hubby is still going to pool therapy two times a week. The ALS center (which is really helpful) met...

Wonderful doctor, in fact. She was FURIOUS at the other doctors i have had and was fuming about the treatment I have had to anyone who would listen. Had the most complete and horrible EMG - the last guy who told me I could walk again if only I did enough exercises -he was a neurologist!) -...

My husband has been diagnosed with PLS 4 yrs ago. He has been progressing at a pretty rapid rate this year. He has stiffness and weakness in both legs he said walking feels like he has 100 pound weights on each leg, knees kicking back in both legs and clonus in both feet. This year he has...

My husband's neuro prescribed Rilutek at a wooping cost of 1,069.99 a month retail from our pharmacy. We do have insurance however we only have a cap of 2800.00 yrly, the total cost will be ours in 2 months plus the cost of all the other meds such as Baclofen and pain meds. In my research I...