rilutek

I was diagnosed last week. Doc has put me on Rilutek and the maximum dose of Vitamin A 800mg and Vitamin C 1000mg he says the body needs per day. Also on Flaxseed Oil 3000mg a day and he tried me on Baclofen to help with the leg stiffness...I was on 4 x 50mg a day but they didn't seem to do...

2nd EMG today and my weakness has progressed so much since the last test and with the other tests I've had that he agrees with the other neuro and is sure I have Motor Neuron Disease (ALS) :-( He's going to get me the drug Rilutek...guess I have nothing to lose by taking it. The diagnosis is...

Hi everyone... I have been reading this forum since my husband diagnosed ALS sept.09. I did get a lot of info and support from this forum. Recently my husband is getting his Medicare, but we found there are only cover partA & partB for $110.50 per month. I read some threads said it is very hard...

Hi everybody, My husband,38 years old,diagnosed with ALS last July. It started with slurry speech in December ( 2009). He can still walk without a cane . His speech is worse than before, I sometimes ask him to repeat. Weakness has started in his left arm and foot. He has balance problems. His...

"While it's not 100% it is highly suspicious of ALS" so he has put me on Rilutek and said we should wait 3 months and see how it progresses. Do I wait? get a second opinion? is this similar to how others were diagnosed? Do I wait to tell my family? It started 9 months ago in my left hand...

Dear all, I am new in the forum and hope to get some feedback from the ones already in the Ceftriaxone trial. My mother, 57 years old, currently live in China, diagnosed ALS 1 year ago while the first symptoms onset already almost 3.5 years ago. At first the doctors could not give a correct...

I wish to thank Dr. Hiroshi Mitsumoto for writing the book, "Amyotrophic Lateral Sclerosis: A Guide for Patients and Families." This book gave me the answers I wasn't getting at our regional ALS clinic. In fact, my sister is struggling with the disease and received little support before I read...

Diagnosed June of this year. I was on the verge of a fresh start, looking forward to growth and love and sex and happiness. A few months later, walking is pretty hard (standing is a bit harder), my left arm is weak, my left-hand grip strength is for crap. I'm falling apart, twitch by twitch. I...

Hi there, My father who is 69 is in the process of being diagnosed with ALS. I say this because he has seen a Neurologist who says that his symptoms - Muscle atrophy, fasiculations, weakness, tremendous weight loss along with dropfoot and a few others, combined with positive looking nerve...

My doctor put me on rilutek, two 50 m a day. I went to walgreens and picked it up and they said that will be $29.00 copay, I didn't think much about it till I got home and noticed that the full price was $1,126.00. My insurance only will cover $4,470.00. I have Rheumatoid Arthritis which the...