just got approved by va for a van to transport me around in my chair. any suggestions on what type of rig i should be looking for. i am thinking a sprinter 2005 model and put a lift in it. i don't plan to drive it my cals will. what all do you folks have? i always hated looking for vehicles so...
I've been promising to post up the pictures of our trip and have finally gotten around to pulling them together. So here we go...
The new abode
The Muttleys are acclimating well...
Acclimated very well as a matter of fact...
At Garden of the Gods in Colorado
Even Chance wanted to try...
I had my visit this morning to discuss getting the DPS (Diaphragm Pacing System) installed. For those who do not know this is where they surgically place electrodes on your diaphragm to stimulate the muscle. Wires come out of the side of your stomach and attach to a small box that controls the...
I have found that I need to support my spine with my arms on armrests to breathe enough. That makes it difficult to type on the keyboard. Has anybody come up with a rig that allows you to lean back and still punch the keyboard and mouse, and see the display?
I am using bipap most of the time. I want to assemble a rig allowing me to move about the house or to the car. I have a Resmed S9.
I see the $600 battery packs. Is that the way to go, or do you have better ideas? Do you put it all in one bag? Are there smaller, more portable bipaps?
After getting a big runaround for RIG at a more local hospital ("You have to have an abdominal CT scan to schedule an RIG procedure." "My husband can't breathe lying down for a CT scan for 30 minutes due to ALS. Can we meet with doc to discuss?" "You have to provide the CT results before you can...
So went in mid January to get my PEG put in, only to wake up in recovery with no tube in me. I was like "Didn't you guys forget something?" They were not able to find a good sight using the PEG procedure with scope down to the stomach. So last Thursday went back in and had a tube installed by...
I havn't been online in a while to check in because my dad's condition is progressing rather rapidly.
We went through a huge mess when dad's air chamber bed went on the fritz, it took a week of tech's coming out to gerry-rig it to work and it failing in the middle of the night for the Medical...
Hi, this is my first post to the forum. My mother has ALS :( First symptoms presented sep 2010, as slurred speech. After several tests, she was diagnosed with ALS in January 2011. Since then her speech has gone, her respitory capacity is down, she had difficulty swallowing and has weakness in...
I have read back through several threads, but haven't seen this question. I may have missed it and if so, I apologize for the duplication.
I know that ALS is different in everyone. My husband has limb onset and so far does not have issues with eating, drinking, etc. He gets winded easily...