respite

  1. D

    Help me help my friend with ALS

    Hey y'all. Please help me help my friend with recently diagnosed ALS... We are in a small rural town and she is the only one. We barely have a neurologist. We have hooked up with a foundation and supposedly they will help us get her a chair and communication device (has trach and PEG, in...
    • drmichelle
    • Thread
    • age als burning caregiver chair clinic communication communication device diagnosed disability friend hours insurance lift medicare neurologist peg power power chair questions residence respite social security symptoms trach travel van vent
    • Replies: 15
    • Forum: General discussion about ALS/MND
  2. R

    Falling apart

    My mom has advanced ALS and I have learned that things can always get worse. I am not my mom's primary caregiver, in fact I don't do that much hands on stuff with her because I have a 3-year-old and a 9-month-old. I feed her when I'm around, buy her foods and drinks she likes, take care of phone...
    • rhiwoman
    • Thread
    • ability als back bedpan book burning camp caregiver caregivers children dad death euthanasia eyes falling family father feeding financial friend go away heart hospice hoyer kids life lift medical natural night oxygen paralyzed power problem respite shower student suction support toileting transfers wanted work
    • Replies: 9
    • Forum: Current caregivers
  3. Markbreton

    Update on Tammy!

    Up until 2 weeks ago Tammy was still able to walk short distances using her walker, use the toilet (had a raised seat), sit in the shower, sleep in our bed. She got really sick stopped eating stopped having bowel movements and looked really terrible. I had to call 911 and get an ambulance to...
    • Markbreton
    • Thread
    • age back bed breakdown breathing caregivers eating electric wheelchair family health home care hours immediately insurance life lift love morphine night pain peg respite shower sleep suction support swallow transfers update vent walker wheelchair
    • Replies: 8
    • Forum: Current caregivers
  4. F

    Hi there All - my first post on this dg

    Hi All Well i feel very selfish making this post as you all seem to have so much love to give , but I am really struggling. My Mum has recently been diagnosed with ALS / bulbar onset and is shortly to move into a lovely nursing home very near to me and my elder sister. For the past 6 months we...
    • Flowerpot
    • Thread
    • als angry bed bulbar bulbar onset children dad diagnosed diagnosis family increase life love night nursing home onset respite support
    • Replies: 3
    • Forum: Current caregivers
  5. J

    Loosing our Battle

    My Father started showing ALS symptoms in November 2007 and was finally diagnosed on February 14, 2008 with limb on-set ALS. This past week, we were informed by my Dad's palliative Doctor that my Dad only has a few weeks left to live. My heart is broken into a million pieces. His ALS...
    • Jessica77
    • Thread
    • als als symptoms bipap dad diagnosed father heart hospice morphine pain respite symptoms
    • Replies: 9
    • Forum: Current caregivers
  6. gbrown

    Caregiver Assistance

    To All: Please find below an email I sent to Coleen Maguire yesterday. The reply she sent me is very informative. For all you Okies, please let this senator know not to keep blocking the ALS National Register. If any of you are interested in the links she refers to, email me off line at...
    • gbrown
    • Thread
    • advocacy age als als registry alsa back cals caregiver cdc cost data disability early family grant grants helpful home care increase information insurance money nursing home questions respite senate support va benefits veterans wanted website
    • Replies: 5
    • Forum: General discussion about ALS/MND
  7. R

    Need some help/advice, catheters etc.

    Hello not sure if I have ever posted here before but, all of your postings have been helpful. I am at about 3 years with this. Seems like I just cannot get caught up with the progession last few months (the planning ahead) equipment wise, etc. Try to keep this short but no one else seems to get...
    • Roni
    • Thread
    • advice afo back caregivers catheter chair equipment helpful hospice night nurses planning respite transfer work worry
    • Replies: 13
    • Forum: People with ALS (PALS)
  8. M

    Low Body Temperature

    Good Friday Afternoon! This morning we had our intake meeting with a home health agency so that we could start our respite care program courtesy of the ALS Association. Very excited! It was the first time that my mom has had her temperature taken in AGES (they never do this at the clinic)...
  9. L

    caregivers..need some advice

    Hi, I am new to this board and I am desperately searching for some advice as to how to help my mother. My father was diagnosed with ALS in 1998. My mother is his caregiver and it is getting to a point where it is is physically and emotionally taking it's toll on her to the point where I am...
    • lisamk
    • Thread
    • advice als breakdown brother caregiver caregivers caregiving diagnosed family father fear lift love meals power power wheelchair problem respite running stress wheelchair worried
    • Replies: 8
    • Forum: Current caregivers
  10. N

    Put Mom in a home?

    Hi All! just got back from boating in the Bahama's! had a great time. Al, you are right I did not get eaten by a shark and got my open water diving certificate. it was lots of fun. while I was gone my aunt came to help with mom who had been planing to go to Yuma for a couple of weeks. The week...
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