respite

Hi all, Well, after almost 3 months of waiting, my evaluation appointment is finally in sight. I will be heading to Houston next week to have all my testing done. But in the meantime, *this* week I'm on vacation in Colorado with my family. It is the first real vacation I hsve taken in at...

Just a little background. My mom had polio as a kid and had been unable to walk since age 3. late last year, she started becoming progressively weaker and we thought she had had a stroke. The doc at the hospital thought it was a stroke and we went home with that. A month later, her speech...

HELP, My husband has ALS and a veteran. The VA says that my husband has the right to say "NO" to a nursing home, because he is in his "right mind"! I am physically and emotionally burnt out, and about ready to have a breakdown. I am the only one around to take care of him! No other family...

Hi, This is my first post - have been lurking for some time reading all the great advice. Thank you all for holding this party and allowing others of us to join. My husband's ALS is fairly well progressed - he started with left arm weakness and slurred speech, and at this point has lost the...

Hi. I found this forum in the hopes of better understanding what my best friend is going through and how I can help her. After reading many posts on here, I think I understand a lot more, how she feels. Her husband was diagnosed in November 2013 and has been going downhill very fast. He is 54...

Hello, My name is Guy. I am 59 years old, English and live in Amsterdam, Netherlands with my 55 year-old husband. We have been married for only three years and I never dreamed I would ever be so lucky as to meet such an incredibly intelligent, intuitive and wise man, let alone live in a society...

Hi there, I joined the ALS support group in late June as my mother was diagnosed on May 30th and being an only child, I needed to take on the role of carer. She first went to the doctors in June/July 2012 with tremors. They discovered that her thyroid med had been mistakenly overdosed by 5 times...

Well, we moved Mom back home because she wanted to spend her last remaining months in her home (she says she has six months but I would be surprised). I was willing to try. But it looks like she is going to have to go back. My brother is starting work 7 days a week, so there goes that help. My...

Making time for yourself is a big deal for a CALS, between the difficulty in arranging it to the guilt you feel! I want to tell you CALS, it is SO important! Now, I have not done it as much as I should, but I do go out with friends at least once a month, and I just got back from a 4 day trip...

hi all. it has been a while since I posted. Just to recap for anyone I haven't met before, Mum was diagnosed Feb 2009. She went rapidly downhill in her first year. 14 months after diagnosis, my brother took his own life. For about 2 years after that we were all just existing, not living. Me, my...