1. G

    I am inspired

    Hello:-D, I am a new member, I joined 2 weeks ago but started my first posts today. It's been wonderful reading through your posts and gaining a better understanding of what ALS means to people and how it has affected their life or their loved ones' lives. Thank you for sharing your words of...
  2. T

    Lifespan Respite Care Act Passed by the Senate

    Received this email today, and wanted to share: -------------------------------------------------------------------------------- The Amyotrophic Lateral Sclerosis Association, Capital Office 601 Pennsylvania Avenue, NW, Suite 900, South Bldg., Washington, DC 20004 (202) 638-6997 * Toll-free...
  3. C

    Questions from a CNA - Bedding for ALS Patients (sores developing)

    I'm a CNA providing 9pm to 7am respite care for a 50yr old female diagnosed 2 1/2 years ago. She wears a bi-pap 24-7 and weighs perhaps 70 pounds. She does have care 24-7 from various health organizations, and from her mother and sister. She can only move her neck from side to side on a pillow...
  4. E

    Dad's gone to an inpatient facility

    Good evening everyone-- Last night, Dad entered a respite facility for hospice patients. They're planning on keeping him only 5-7 days max, and this was in the works for a while before a bed came open for him. So far so good, except for the middle of the night last night. No one seemed to...