respiratory

Hi people. I'm from Spain, my name is Carlos and I'm 25 years old. I'm worried because this last year i started to experience some symptoms like arthritis, tinnitus, vertigo, cognitive problems, fasciculations over the body, muscle cramps, dipsnea etc... and my worts symptom my tongue... it's...

My latest symptom allied to everything else is abdominal pain after eating. Stomach gets bloated and hard ,making sleeping difficult. Since all this started I've had reflux but this is new and pretty painful. I've read that als slows down digestion and can cause this.I'm back to the Neuro in...

My dad was diagnosed in May last year. Within 3 months he was in a wheelchair and 3 months after that his speech started to go. He is now in the end stage - no speech, no arms/legs, and unable to swallow. His FVC was 24% in January. He had been using the trilogy mask at night, but over the last...

I’ve been waking in the mornings more and more with a dull headache. It usually improves as the day goes on. I know that can be a sign of CO2 retention, but I don’t feel short of breath and my most recent FVC was 75%. I do sleep lying flat, and it feels comfortable. I’ve also considered...

Dear PALS, I've had an earlier thread regarding my mother, who's diagnosis is still uncertain. Both Laurie and Karen were very helpful. A short intro: My mother is a very complex case and has shortness of breath, orthopnea, loss of strength in upper arms and some atrophy of the deltoid...

Hello, I am a CALS--my mother was diagnosed with ALS about 6 weeks ago. She has limb-onset ALS and no longer has the use of her arms. Her legs are getting weaker, so they will go next. Her breathing /swallowing is great. Her respiratory therapist said her respiratory function was "off the...

Hello everyone, I know from my title I picked the rarest of the rare to worry over, and I’m sorry ahead of time if come off as someone with just health anxiety. I don’t mean to waste no ones time here especially those who are suffering from this terrible disease. My prayers go out to all of...

My sister was diagnosed with ALS 4/2015. She is at the end and I need to know the signs and what to look for. I need to know how much more time I have left with her. She is currently on a bipap machine, she cannot breath on her own anymore. That has been since August 2017. Monday her chest was...

Hello everyone. This is all very new to me even though I feel as though I am getting a crash course in ALS care. My beautiful mother was diagnosed with ALS in October. She is 77 and lives with me. Her progression has been so fast I am having a hard time keeping up with all she needs. I have...

My honey decided it was time to go on hospice care last week, All was going well, a few new meds to help with the respiratory distress and a nurse a phone call away! Very nice until Sunday morning, I realized his lips had swollen over night till they looked like Mik Jaggars' lips, One of his...