respiratory

  1. C

    Symptoms persisting. Respiratory Onset?

    Hello all, some of you may remember I made a post about a month ago concerning my symptoms. That thread is now closed but I will summarize everything here. My concern is that I have been having very concerning symptoms the past 2 months and I am worried about my health. I will break down...
  2. F

    C9orf72

    I have not posted in a while, but mom passed on Feb 22 from respiratory failure, she lived 16 months with the disease and what was heartbreaking is that despite us knowing this would happen we did not know it was going to be so soon, from laughing with her on Saturday to seeing her fall sleep on...
  3. E

    Here for an opinion

    First, I want to thank all the contributors to this forum especially PALS/CALS. I do recognize that your time is valuable. Yet, you devote so much time to helping others (a large percentage of people that don't have anything that remotely resembles ALS) which is truly remarkable. About 10...
  4. M

    Link with OCD and ALS??

    My dad was diagnosed with ALS a year ago, he has respiratory onset. Although he uses a NIPPV up to 20 hours a day and needs a motorised wheelchair for anything longer than a few steps he's actually doing ok considering the prognosis last year, a year later he still can eat and drink what he...
  5. S

    Concerned about Bulbar symptoms and respiratory issues

    Hello Everyone, I have been on here before but tried to stay off, last time i logged on was in 2016. I will keep this short as i have been getting some new symptoms and need some advice. I have voice hoarseness issues which come and go but my voice been bad for almost 4 months especially my...
  6. Bestfriends14

    A question for PALS

    Hello, My husband has just ended his clinical trial (he dropped out March 28th) for Pimozide. Apparently, he's not progressed in his right leg or arm since last September but has only slightly in his left leg, which is his drop foot leg. However, I am finding it harder and harder to believe...
  7. W

    Symptoms? FALS

    Let me start by saying I really hope you all tell me it's all in my head. I've read the sticky thread but I'm still unsure, so please bear with me while I ask for experienced opinions. A little background. A couple years before I was born (I'm 34 now), my paternal Grandmother and uncle (her...
  8. T

    Could I have respiratory onset als?

    Hi everyone my name is jake and I’m 28 years old. My symptoms started over 2 years ago with random twitching and mild breathing issues. This past year my breathing has declined a lot. I’ve had a full cardiac and pulmonary work up all normal except pft showing restriction. I then saw a...
  9. C

    Respiratory Onset- Update

    Thought I would give status on my husband for those few with this ALS type. After 10 months of tests, his final diagnosis was July 2017. He is weakening and hasn’t left house for several months. Just better since breathing is very tough. He is on trilogy 18 hours a day. A blessing that...
  10. S

    Bulbar ALS?

    Hi people. I'm from Spain, my name is Carlos and I'm 25 years old. I'm worried because this last year i started to experience some symptoms like arthritis, tinnitus, vertigo, cognitive problems, fasciculations over the body, muscle cramps, dipsnea etc... and my worts symptom my tongue... it's...
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