respiratory

  1. P

    Respiratory Onset ALS

    As a CAL, I recently joined the forum. I am wondering if there are any folks out there with respiratory onset ALS? If so, would they like to establish a discussion? It seems to me that there are quite a few different considerations with this form of the disease, as the breath goes first...
    • pinky
    • Thread
    • als als? breathing cramps diagnosis diaphragm muscles neurologist onset problems respiratory respiratory onset swallowing symptoms voice weight loss
    • Replies: 7
    • Forum: General discussion about ALS/MND
  2. Nikki J

    Tirasemtiv

    Cytokinetics plans to take Lou Gehrig's disease drug into late-stage study - San Francisco Business Times If you remember this showed some possible respiratory benefit in phase 2 but did not slow decline in ALSFRS scores. And we have been disappointed before when a drug went from phase 2 to 3...
  3. L

    Questions re ALS

    Hello everyone, I'm a 36 year old male and have been experiencing some weird symptoms lately. Around July or August of last year I started having twitching in my eye lids both right and left. I then noticed random twitching in my biceps and legs. Either the twitching went away or I just did...
    • Lawdog
    • Thread
    • abdominal ability advice als als? ankle arm back breathing bulbar clinical diaphragm diaphram early eating emg eye fasciculation fingers foot muscles night onset problems progression pulmonary function test questions respiratory respiratory onset second opinion shoulder sleep spasms speech swallowing symptoms test tests twitching weakness worried
    • Replies: 33
    • Forum: Could this be ALS?
  4. M

    Emerson Cough Assist CA-3000

    Raraely used and in good condition. Belonged to our son who recently passed. Comes with a box of "cut to fit tubing" (several feet) along with 9 new masks, all with a new filter. Asking $1900 plus shipping. Will deliver for free in the Denver metro area. If not familiar, you will need a...
  5. W

    Dr Google ruined my life: A manifesto (To everyone who thinks they might have it)

    Hello everyone, Some of you might remember me from a few weeks to a month ago. I had/have some progressive issues with twitching in my legs, weakness/pain in my hand and breathing difficulty. This is just a heads up about the dangers of self diagnosis on the internet. No matter who you ask be...
    • wesker17
    • Thread
    • als als? anxiety atrophy autoimmune back battery breathing cramping crying death diagnosis emg exhaustion fasciculations go away goodbye health hours mnd mnd/als muscle onset pain progression reading respiratory story stress symptoms tests twitching weakness worry
    • Replies: 4
    • Forum: Could this be ALS?
  6. P

    Caregiver guilt round 2

    I am about to begin my second round as a caregiver. My mom is the 3rd of her siblings to experience this ALS monster. I was the caregiver for her sister who passed in 2010. She only lived 10 month after diagnosis. So needless to say I am terrified of walking through this again. But the real...
    • pastor
    • Thread
    • als bulbar bulbar onset caregiver diagnosis guilt life morphine onset problem respiratory ventilator
    • Replies: 25
    • Forum: Current caregivers
  7. S

    Weird question

    On death certificates, do they actually put ALSs cause of death or respiratory failure etc?
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