respiratory

  1. D

    Trilogy with Passy-Muir valve?

    I was recently switched from an LTV950 to a Trilogy. I have always been able to speak easily on the LTV with my cuff deflated. An additional 5 of PEEP from an inline valve allowed more than one or two words per breath. With the Trilogy, I am back to one or two words and it a horrible step down...
  2. L

    Seeking help on my symptoms, scared and depressed

    Hello all, I am desperately seeking for help regarding my symptoms. Doctors do not seem to listen to me or take me seriously so it would be really appreciated if anyone with the knowledge of ALS symptoms could help me. I am an immigrant living in Canada, Toronto, 26 years old female...
  3. A

    Inquiry about Respiratory Onset ALS

    I have read the “Read Before Posting” section and must admit that I do not have clinical weakness. However, my symptoms are not typical of limb onset ALS, but rather respiratory onset (or perhaps thoracic?). Quick information about me, I am a 30-year-old male. I completely understand the...
  4. M

    Recently started having new symptoms

    I’m a paramedic and this January. I started having symptoms very vague almost stroke like symptoms that took me to the emergency department on several occasions. Since that time I’ve gotten progressively worse. I’ve had every blood test imaginable and probably MS was the diagnosis. During this...
  5. lgelb

    Multi-center trial now recruiting worldwide

    The aim of this trial is to test a heart failure drug (levosimendan) already on the market to confirm an earlier study suggesting respiratory impairment could be delayed. It's an oral capsule, the trial is placebo-controlled, and you cannot be on BiPAP.
  6. Tippenme

    Newbie--need help decoding respiratory numbers...

    Hello to all: I am a newbie and was diagnosed after a year of symptoms in June of 2018 at OHSU here in Portland. (I had previously gone to Mayo in Rochester and was badly misdiagnosed...a story for another time perhaps.) I have been reading through the forums and am truly blown away by the...
  7. Buckhorn

    My sweet husband is gone.

    My PALS, husband Dave passed away a week ago, July 4th. It was sudden and I did not expect it. Dave had a history of DVT's, pulmonary embolism, and a heart valve issue, which had been monitored closely by a cardiologist over the years. After Dave's ALS diagnosis, we both felt a heart attack or...
  8. T

    Familial ALS

    Thank you for adding me/us to the forum. In brief, here is our story: My husband lost his mother to ALS when she was 59 years old. She had one aunt, one uncle, and two first cousins who also passed from ALS. There were a couple other family members who may or may not have had early signs, but...
  9. M

    New to BIpap Question

    My PALS received his Bipap machine yesterday. It is a Philips "Dream Station" Bipap S/T. It is from the VA, so we have added layers of admin when dealing with info etc. so I thought I'd ask here first. The respiratory tech who brought it said my PALS is to wear it at night only right now...
  10. IgorZilio

    Update: ALS diagnosis

    Well, I went 2 weeks ago to see the ALS specialist and he gave me an official ALS diagnosis. It’s been really hard to accept/understand this. My whole life is falling apart, I live alone and far from my family, so I decided to go back home to have more support and also because everyone is super...
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