respiratory

Hi, all, Patti died last night from respiratory arrest. She had a good quality of life until her sudden and too-soon departure. I was just barely getting to know you all. Best of luck on your journeys. Calvin

Hello everyone, I was just thinking how helpful it would be if there could be a team of neurologists, respiratory therapists, etc. that can visit the PALS every time it becomes clinic time as it gets harder and harder to move. I know some things are not doable but my mom is so scared to go out...

Many thanx to those have posted their stories and especially the stickies...those have been helpful. Lots of good info there! Back a few months ago someone kindly said that after my neuro consultation that they hoped (for my sake) that I would not be coming back to this site. I echo that...

This post is for those who have experienced (or are currently experiencing) caring for someone with FTD/ALS. I am hoping to maybe gain some insight and direction from those of you who have been down this road before. I'll give you a quick rundown of our situation: After exhibiting...

Hello, my name is Anna, i'm 37 years old and was hoping to get some opinions on my situation. Thanks you very kindly in advance for taking the time to read, I will try and keep it short. I have been having progressing symptoms for 6 months: - twitching inside, below and on top of feet in the...

Hello all - I found this forum a month or so ago and held back on posting since I just don't know what to say really. I was diagnosed late November and felt so alone for so long. My appointment was late in the day and though I was at a great facility, all support folks were gone and I had no...

Morning everybody xoxo Hubbs went to the Montreal Neurological Institute yesterday. He had another EMG and his doctor is stumped at his progression. He says that Ron's progressing faster than he expected. So much so that he is sending him for intravenous immunoglobulin therapy (IVIG) thinking...

Last week, Patti and I went to the clinic and also met with our regional ALSA rep. Some good and some bad has come of this. The Good: People are cracking, and we're starting to get equipment and other needs fulfilled. Patti's power chair has finally been approved (only took 6 months of games...

My dad was diagnosed with bulbar onset last October. They believe his first symptoms started in January which means he's a year into it. He's had respiratory issues for At least the past six months. I was wondering if there was anyone here dealing with the same thing. I go to a local support...

Hi ! I have been recently diagnosed chronic respiratory failure, outcome of diaphragmatic emi-paresis of unknown origin, presumably a neuromuscular one. So far I wish that the illness concerns this muscle only, but who can say ? Being a newbie in noninvasive ventilation, I find demanding to...