respiratory onset

  1. P

    Respiratory Onset ALS

    As a CAL, I recently joined the forum. I am wondering if there are any folks out there with respiratory onset ALS? If so, would they like to establish a discussion? It seems to me that there are quite a few different considerations with this form of the disease, as the breath goes first...
  2. L

    Questions re ALS

    Hello everyone, I'm a 36 year old male and have been experiencing some weird symptoms lately. Around July or August of last year I started having twitching in my eye lids both right and left. I then noticed random twitching in my biceps and legs. Either the twitching went away or I just did...
  3. A

    Anxiety or cause for worry?

    Hi all, over the past month and a half, I have had continuous twitches in my left leg and sporadic twitches everywhere else. The left leg feels fatigued pretty often but I know this is not really how als presents. Yes I have read the stickies and I have been to the neurologist as well as my gp...
  4. J

    respiratory onset ALS

    Hello everyone, I am new to this forum. Is there anyone on this forum who has experience with a loved one, or themselves, with respiratory onset ALS? It affects only 4% of the ALS affected population. I am looking for guidance and exchange of information. About 6 months ago, we noticed my 72...
  5. S

    A worried Scotsman that has read the stickies.

    Hi there, I have read the stickies and I hope you don't mind me asking a few questions now that I have. My symptoms have been the same from day one, I have felt as tho I can't hold myself up usually once a day. This feeling just comes on, usually with a burning fatigue style pain in my back rib...
  6. S

    Could someone be kind enough to advise me?

    Hi there in late 2008 I had an operation on my tailbone- nothing major but the following day I could hardly breathe- the anasthetic left me with half breaths and very painful when doing them. This lasted one day. Following the operation I spent eight weeks in bed and when I returned to work I...
  7. P

    Respiratory fear

    I've been twitching for fifteen months, and this has been diagnosed as benign fasciculation syndrome: I had an EMG a couple of weeks after my twitching started, and while the neuro saw fascics on the EMG, he deemed them benign. I have no muscle weakness or atrophy, but I have developed breathing...
  8. A

    I'm 18 and I'm scared.

    Hi there, I'm an 18 year old female. For 25 days so far I've been in constant distress. It started with difficulty breathing and severe chest pain. Elevated heart rate was treated with relaxants, and an Echocardiogram showed nothing. Bronchitis was eventually diagnosed and treated with...
  9. R

    Worried sick about ALS. Respiratory onset.

    Ok, so here is my dilemma. I believe that I am having respiratory onset of ALS. All the symptoms are there, can't sleep on my back, uncomfortably aware of my breathing all the time, and I feel like I have to breathe in deep all the time. This has been going on for a year or so and has not...
  10. st123

    Respiratory onset

    The doctor told us that 'respiratory onset' of ALS occurs in only 1-2% of cases. Just wondered if anyone else experienced breathing issues prior to the bulbar onset or any noticeable muscle weakness?