respiratory onset

  1. P

    Respiratory Onset ALS

    As a CAL, I recently joined the forum. I am wondering if there are any folks out there with respiratory onset ALS? If so, would they like to establish a discussion? It seems to me that there are quite a few different considerations with this form of the disease, as the breath goes first...
    • pinky
    • Thread
    • als als? breathing cramps diagnosis diaphragm muscles neurologist onset problems respiratory respiratory onset swallowing symptoms voice weight loss
    • Replies: 7
    • Forum: General discussion about ALS/MND
  2. L

    Questions re ALS

    Hello everyone, I'm a 36 year old male and have been experiencing some weird symptoms lately. Around July or August of last year I started having twitching in my eye lids both right and left. I then noticed random twitching in my biceps and legs. Either the twitching went away or I just did...
    • Lawdog
    • Thread
    • abdominal ability advice als als? ankle arm back breathing bulbar clinical diaphragm diaphram early eating emg eye fasciculation fingers foot muscles night onset problems progression pulmonary function test questions respiratory respiratory onset second opinion shoulder sleep spasms speech swallowing symptoms test tests twitching weakness worried
    • Replies: 33
    • Forum: Could this be ALS?
  3. A

    Anxiety or cause for worry?

    Hi all, over the past month and a half, I have had continuous twitches in my left leg and sporadic twitches everywhere else. The left leg feels fatigued pretty often but I know this is not really how als presents. Yes I have read the stickies and I have been to the neurologist as well as my gp...
    • Anxiety2
    • Thread
    • als anxiety breathing breathing problems clean emg clinical emg headaches neurologist night onset problem problems questions reading respiratory respiratory onset sporadic symptoms symptoms? twitches umn worry young
    • Replies: 20
    • Forum: Could this be ALS?
  4. J

    respiratory onset ALS

    Hello everyone, I am new to this forum. Is there anyone on this forum who has experience with a loved one, or themselves, with respiratory onset ALS? It affects only 4% of the ALS affected population. I am looking for guidance and exchange of information. About 6 months ago, we noticed my 72...
    • JKErskine
    • Thread
    • als als? confused diagnosis father information life muscle muscle weakness no diagnosis onset peg reading respiratory respiratory onset shortness of breath tracheotomy weakness
    • Replies: 14
    • Forum: General discussion about ALS/MND
  5. S

    A worried Scotsman that has read the stickies.

    Hi there, I have read the stickies and I hope you don't mind me asking a few questions now that I have. My symptoms have been the same from day one, I have felt as tho I can't hold myself up usually once a day. This feeling just comes on, usually with a burning fatigue style pain in my back rib...
    • Scottishal
    • Thread
    • advice anxiety back bed breathing burning diagnosis fatigue food hope night onset pain questions respiratory respiratory onset respiratory onset disease shortness of breath sma symptoms test tests weakness worried worries worry
    • Replies: 0
    • Forum: Could this be ALS?
  6. S

    Could someone be kind enough to advise me?

    Hi there in late 2008 I had an operation on my tailbone- nothing major but the following day I could hardly breathe- the anasthetic left me with half breaths and very painful when doing them. This lasted one day. Following the operation I spent eight weeks in bed and when I returned to work I...
    • Scottishal
    • Thread
    • back bed choking eating food hours muscles night onset phlegm respiratory respiratory onset respiratory onset disease shortness of breath swallowing switch symptoms tests trouble swallowing work worriedaboutsymptoms
    • Replies: 2
    • Forum: Could this be ALS?
  7. P

    Respiratory fear

    I've been twitching for fifteen months, and this has been diagnosed as benign fasciculation syndrome: I had an EMG a couple of weeks after my twitching started, and while the neuro saw fascics on the EMG, he deemed them benign. I have no muscle weakness or atrophy, but I have developed breathing...
    • Paul777
    • Thread
    • atrophy breathing breathing issues diagnosed emg fasciculation fear muscle muscle weakness onset respiratory respiratory onset twitching weakness
    • Replies: 3
    • Forum: Could this be ALS?
  8. A

    I'm 18 and I'm scared.

    Hi there, I'm an 18 year old female. For 25 days so far I've been in constant distress. It started with difficulty breathing and severe chest pain. Elevated heart rate was treated with relaxants, and an Echocardiogram showed nothing. Bronchitis was eventually diagnosed and treated with...
    • ayestee
    • Thread
    • als als? back breathing burning diagnosed female headaches heart immediately insurance mri onset pain respiratory respiratory onset scared swallowing symptom trouble swallowing twitches twitching wrist
    • Replies: 9
    • Forum: Could this be ALS?
  9. R

    Worried sick about ALS. Respiratory onset.

    Ok, so here is my dilemma. I believe that I am having respiratory onset of ALS. All the symptoms are there, can't sleep on my back, uncomfortably aware of my breathing all the time, and I feel like I have to breathe in deep all the time. This has been going on for a year or so and has not...
    • RichardRR
    • Thread
    • 18 years old als back breathing dad eye family family history info onset problems respiratory respiratory onset sleep symptoms twitching worried
    • Replies: 13
    • Forum: Could this be ALS?
  10. st123

    Respiratory onset

    The doctor told us that 'respiratory onset' of ALS occurs in only 1-2% of cases. Just wondered if anyone else experienced breathing issues prior to the bulbar onset or any noticeable muscle weakness?
    • st123
    • Thread
    • als breathing breathing issues bulbar bulbar onset muscle muscle weakness onset respiratory respiratory onset weakness
    • Replies: 19
    • Forum: General discussion about ALS/MND
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