respiratory onset

  1. S

    Respiratory Onset Questions

    Hi All, I was here awhile back, but still have questions I am hoping you can help me with. Can you have respiratory onset with a clean EMG? What part of the body is tested for that? I have CMT1A, but have unexplained expiratory muscle weakness. The muscles are only at 40%. My CMT neuro...
  2. tripete

    Hospice

    Two weeks ago I emailed and asked my ALS nurse to call me. When she did I told her that my headaches had returned and that doing even the smallest things left me out of breath and exhausted. I had been to the clinic two weeks prior to our phone call. She recommended that we once again have my...
  3. S

    Respiratory Onset ALS

    After finding the love of my life 5 years ago and just planning our retirement traveling with our toy hauler all thru out Canada and US my partner was diagnosed wish ALS on December 18,2015. Not only are we in full shock but we found out today that he has the worse type "Respiratory Onset ALS"...
  4. H

    Scared...

    Hello all, I did read the sticky before posting wanted to be sure to still ask my question as it includes some breathing concerns as well. Here are my symptoms which I am convinced are ALS: - right side of body is always cold and I have pulled muscle in my calf all the time and feel as though...
  5. C

    Respiratory/bulbar onset?

    Hey guys the name is Carson I'm 27 male I'll be 28 on Halloween this year and I'm from Phoenix Arizona and I've been dealing with some things that have concerned me. Started off with body wide twitching been going for 10 months straight now and shortness of breath which I noticed more when...
  6. G

    Symptoms for weeks

    Hi everyone, I know your time is valuable so I will make this as succinct as I possibly can. A little over a month ago I started waking up with headaches and began waking up at least two times each night. I've also noticed myself become short of breath a lot quicker than normal. Then, over...
  7. L

    Sorry, but very afraid

    Hi everyone! Sorry to bother you all, but over the past month I've been experiencing the constant need to yawn and to sigh (I'm guessing I'm yawning 100 times a day, at least) and have been waking up around twice every night for this month, some times waking up confused and in a dream-like...
  8. akaal

    akaal update

    Hi everyone. I first joined this group in 2010 a few months after the passing of my oldest sister from fALS. I have stopped in now and then to read but have not posted much, so I will just give you a brief update of how things have been. In February of 2014 both my younger brother and...
  9. starente15

    Falls with compromised diaphragm

    Hello everyone. At the last support group I attended, I spoke to someone with respiratory onset about what would happen if a person who's diaphragm is affected were to fall. Their wife gave me a checklist of 1) roll them onto their side, 2) get a pillow behind their back and head and 3) get...
  10. C

    Dr Suspects ALS and breathing issues

    Since my last post i've had some pretty scary developments with my breathing among other things. because my doctor 'suspects ALS' after a battery of tests and EMG, I'm having a hard time putting into words what im experiencing particularly with my breathing. My breathing ability seems to have...
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