respiratory failure

  1. BethU

    Dx in writing?

    Hi, all ... I can't believe I have questions about my diagnosed again, but I am wondering if other people get a diagnosed of ALS in writing. The issue has come up because my niece, who is taking time off work to run errands for me, needs proof of my diagnosed for her employer so she can get...
  2. M

    Recent patent; treatment

    Has anyone seen or tried this...? Sorry for the extensive length. Hope I didn't break any rules by copying/pasting it on here. http://www.wipo.int/pctdb/en/wo.jsp?WO=2008021970 Thanks. Mike TREATMENT OF MOTOR NEURON DISEASE, INCLUDING CERTAIN NEUROLOGICAL DISORDERS, MOTOR NEUROPATHIES...
  3. Elaine Ramos

    caregiver for husband/I have bad dreams

    Hi All, New to this forum. I feel overwhelmed with caregiving for husband diagnosed to 2 years ago with bulbar onset. He has FVC 30% and close to respiratory failure in the next few months. We've been married 16 yrs. He is 48 and I am 39. We have 2 girls, 11 and 14. He wants to get a vent...
  4. C

    My Mother So Far

    Hi, I posted a message the other day without actually introducing myself because I wanted to comment on the topic but didn't have time to go into details about my mom's history. Just a year ago, she started having problems picking up her feet, and she would trip and fall occasionally. We...
  5. R

    BiPAP vs. Invasive ventilation

    Hi, My mom in India was diagnosed with MND in Sep 2006. It started in her abdominal muscles, spread to the back and legs. Her speech is not slurry but has lost its volume. She speaks clearly but with a very very low volume. She can still swallow but has started to have trouble breathing...
  6. K

    Breathing Difficulties Worsened

    I posted a few months ago on this site, but I have a little more information and worsened symptoms, so I just wanted to hear other people's experience with ALS/MNDs. I had several debilitating symptoms that started 3 years ago before the motor nerve involvement, but I won't go into detail for...
  7. N

    Is it Respiratory Failure?

    Greetings, This is hard to write. My mom (my PALS) has been declining rather rapidly over the last few weeks. Just this past week she's had a few days of substantial overall weakness and her breathlessness is getting worse. The night before last she evidently felt that she could not breathe at...
  8. Lorie

    Later Problems with ALS

    ALS is a progressive, disabling disease. Walking, speaking, eating, swallowing, breathing, and other basic functions become more difficult with time. These problems can lead to injury, illness, and other complications. Respiratory problems are the most common serious complication of ALS. As the...
  9. A

    Respiratory failure?

    I have noticed my Mom has a very weak cough and her sneezing does not have much force behind it. She can still talk fine, although her volume is not as loud as it once was. Can anyone tell me if this means it is starting to go into her respiratory system? and if so, is this what happens in the...
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