respiratory failure

  1. icuadrado

    ALS - FOR SALE Used Hoyer Lift, BIPAP Ventilator and other items (CHEAP!)

    My loving father lost his battle with ALS not too long ago. And I have a few items that I need to sell, to help pay the expenses for the funeral and other miscellaneous. All the items are in very good conditions. My mother, who took care of my dear father during this difficult time, was very...
  2. RoadKill

    Link between familial ALS, sporadic ALS

    UMass researchers find ALS link WORCESTER — Researchers at the University of Massachusetts Medical School have uncovered new evidence suggesting a link between familial ALS and sporadic ALS. In a study published today in Nature Neuroscience, scientists said the SOD1 gene, which is implicated...
  3. M

    In full locked in syndrome, eyes too...:(

    I've posted a few times before and wanted to give u all an update on my mom. She has no movement at all anywhere and is reliant on a ventilator around the clock and a feeding tube through her nose (we had complications with the stomach one). She's been diagnosed since 1999 as her symptoms...
  4. CCMominVA

    New here

    Hello everyone, I am a caregiver along with my mom for my father, who was diagnosed with ALS in Oct. 2006. He has been very mobile up until about a month ago, with limb onset. No bulbar symptoms at all, he still is able to eat and drink without problems, and his speech is as clear as the day he...
  5. H

    Miracle?!?!?!

    I hope some one is awake! I need someone to rationalize this with me. My father has been sick since June (first symptom) with rapid progression, and respiratory failure since oct through dec, where he only has movement of his hands/fingers mostly and his head side to side and a bit up and...
  6. C

    CK-2017357 - Cytokinetics Announces Orphan Drug Designation Granted to CK-2017357 for

    Something that may be of interest, as they say they want to start Clinical Trials 'in the first half of 2010'. My (limited) understanding is that this product can help with 'skeletal muscles' which would improve mobility for PALS but if would not improve functions such as breathing etc I hate...
  7. I

    Trache and Vent question

    Since ALS doesn't actually kill you but respiratory failure does, if someone is on a trache and vent then couldn't they live indefinitely? for 20-30 years or even longer? I'm confused as to why or how ALS could kill you if you were on a trache and vent. Would this only be from possible...
  8. L

    Respiratory failure - signs?

    I hesitate to ask this as it seems indelicate in some way, but I'm struggling to understand the signs and symptoms of respiratory failure. Everything I'm told seems so vague - tired, shortness of breath, loss of appetite. It seems ALS alone would cause all of those symptoms. Dad's bulbar...
  9. rocmg

    weak cough a sign of respiratory difficulty?

    hi all... just wanted to know how significant the weak cough is. Is it the throat muscles weakening, signaling the beginning of swallowing difficulties? or is it as I suspect, sign of respiratory weakness? mum has not the forceful cough she used to have... while she is still able to clear...
  10. K

    Dinner comment

    So last night, I went to dinner with my husband, daughter and my inlaws. My husband was telling us about a coworker from another city's office that just commited suicide. Then, my father in law adds his comments, "I don't know why anyone would do that to themselves, unless they were terminally...
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