Tonight my dear husband passed away from respiratory failure from ALS. His year long battle is over and he is now at peace. His spirit and sense of humor was not compromised by this evil disease. No vent, no trach, no feeding tube. His wish was to die at home and I was able to honor his...
This is the first time i have written here, my mom was diagnosed in september 2011, My mom is a very independent woman, and to today i can not find the courage to confront her with her diagnose, she does not know what this disease is just like i didnt either, but the more i look and find out and...
ability
als
amino acid
back
confused
cure
cured
death
diagnosed
early
flu
go away
helpful
hours
immune
magnesium
media
movement
muscles
natural
possible a
problem
problems
progression
questions
research
respiratoryrespiratoryfailure
shoulder
sleep
speech
stages
story
supplementation
supplements
support
surgery
swallowing
symptoms
testing
tyrosine
undiagnosed
unknown
weakness
worldwide
My husband passed away yesterday 9th March. I have never posted before but I wanted to pay tribute to his dignity and bravery. He was diagnosed in Sept 2010 and then respiratory failure 2 months later so he used a bi-pap for 17 months. As it progressed he had no mobility with it also affecting...
Hi, I am Gina, Kevin's wife. On January 30 I took Kev to the hospital because he had been having dizzy spells during the day. By the time the ambulance got him to the ER, he was in respiratory failure. He agreed to be intubated and sedated to have a chest CT scan. It was negative. the next...
My Dad was diagnosed with ALS in July. Looking back, he had been saying to us for several months that it was hard to project his voice. I didn't really notice anything though, I suspect his voice gradually weakened over several months before. He complained that it was hard to raise his arms...
advice
als
back
bipap
choke
dad
diagnosed
early
fasciculations
fatigue
life
lift
neurologist
neurology
peg
questions
respiratoryrespiratoryfailure
sleep
support
voice
weight loss
The language of this new and latest notice, you may need to 'login' to their web site to read it, suggests that more than fifty percent of newly diagnosed ALS patients are likely eligible for DPS, whereas other notices have either not articulated an estimate or offered an estimate that implied...
Let me first apologize. I know that I have not been on the forum over the last 3 months. Not a day has gone by that I have not thought of my "forum family" and have continued to keep all of it's members in my prayers. Many have visited me on FB and asked me how I was and relayed everyone's...
ability
advocacy
advocate
als
als research
awareness
back
cals
cdc
cell
chair
cure
decline
diagnosed
diaphram
early
emg
family
guilt
heart
hope
improvement
mip
mistake
night
nurses
onset
planning
questions
research
respiratoryrespiratoryfailure
stem cell
story
support
surgery
symptoms
tests
trial
worry
Wall Street Webcasting - Neuralstem, Inc.
If you go to the link and register (it's free) just make up a company name, I just put in ALS, you can listen to the podcast and advance through the slides. The first half of the podcast mostly discusses the trial taking place at emory. At about the...
I'm desperate. I really dont know what to do. My dad has been in the hospital since last Monday. He got a infected gallbladder that caused him a distended belly. As a result he went into respiratory failure. He is been not eating and it is weak but very
Lucid. The dr wants to extubate him tmrw...
I'm desperate. I really dont know what to do. My dad has been in the hospital since last Monday. He got a infected gallbladder that caused him a distended belly. As a result he went into respiratory failure. He is been not eating and it is weak but very
Lucid. The dr wants to extubate him tmrw...