respiratory failure

  1. A

    Interpreting the medical specialists

    Help! In the last week we have had visits by our GP, hospice nurse and palliative care specialist. ( she's head of palliative care in our large regional hospital that is 1 hour away.) We do feel very special that we have so many people helping us! The problem is, all of them finally get around...
  2. Duker52

    Respiratory Failure 101

    I don't mean to be morose, but this is something I know only bits and pieces about. Not to offend anyone, but my greatest fear is losing control of my extremities and not being able to move. I want to die of respiratory failure long before that time comes. My respiration three weeks ago was...
  3. Z

    hereditary neuralgic amyotrophy

    Rantish first post: I have heriditary neuralgic amyotrophy (Parsonage-Turner). My father, Grandmother, Grandmother's brothers, great grandmother-all had this. My father's first cousin recently died of respiratory failure secondary to the disease. Absolutely no one treats it or has any interest...
  4. M

    What Ventilator to choose? anyone have idea/experience abt "Microtak 920 Resgate" ?

    What Ventilator to choose? anyone have idea/experience abt "Microtak 920 Resgate" ? Hi, My mom was diagnosed with ALS on Dec, 2015. Recently she fainted & doc's told us that she has type 2 respiratory failure. She has undergone tracheostomy. A Bipap device is attached with the tube. She is...
  5. M

    Hello everyone, I'm here for my mom, who has ALS

    Hi everyone, My mom was diagnosed with ALS on Dec, 2015. on Feb 2, 2016, she fainted & doc's later told us that she now has type 2 respiratory failure. We was not prepared for such quick progression of the illness. She has been operated & now has a tracheostomy tube inside her trachea, with...
  6. K

    Please help asap!

    My dad has taken a turn for the worst the last couple of days. He has had so much mucus build up that he's unable to cough up. He usually suctioning and won't use the cough machine much because he believes it will make it worst. His oxygen level has been lover so hospice nurses have been wanting...
  7. G

    Main Cause of Death

    I am sorry if this post seems rather blunt but I have no idea who to ask a question that just wont go away, its been in my head for months! What specifically do people with MND normally die from. Is it normally respiratory failure? On a percentage basis does this account for 90%, 50% .... if so...
  8. Nikki J

    The story of Dr Bedlack's tattoo

    I heard a shorter version of this in an interview with him a couple of years ago. This is more detailed. It is shared here with his permission My name is Rick Bedlack. In the past decade I have seen more than 1500 patients here at Duke with ALS. Tonight I will tell you about one who left a...
  9. starente15

    Bowels Affected?

    Hi everyone. Things are gong down hill at a rapid pace. Today hospice had the SW come in for the "talk". My father's bowels appear to not be working and he is constantly constipated. Nothing they have done has resolved the issue and they won't do anything more "aggressive" than an enema...
  10. K

    ALS/mg/trying to find hope

    First I appreciate your message to newcomers there sure is alot of misleading information on the net. Second I'm not really asking if I have ALS, as I have been told 3 times I do and now find myself at one of the leading ALS centers in the south, I have had 3 emgs first neuro said it was...
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