research

  1. 1

    What do I have?

    So glad I have found this group. I have some serious symptoms and questions about tests that I hope someone can answer for me. In April of 2017 I started falling for no reason. My knees would just buckle and down I would go. I fell at least once a week thmonth of April. Then I would go about...
  2. T

    Muscle atrophy (?)

    Hello! Thank you in advance to anyone who gets back to me. I have muscle twitching mostly in my left leg but also all over my body, pretty normal for me but I just wanted to state it. My left leg on my upper thigh has a dent in it and after doing some research the first article that pulled up...
  3. Doglady

    Microsoft supported Research - Answer ALS

    Thought this was an interesting article about a research project called "Answer ALS" where PALS can help to collect clinical, genetic, behavioral, molecular and biochemical data on people living with ALS. Using artificial intelligence and machine learning, researchers plan to analyze the data to...
  4. H

    ALS fear with thenar atrophy, twitching, cramp tendency

    Hi there Great respect to your forum and the great people that are fighting the disease, friends and care givers! ALS is a shocking tragedy for humanity in 2019, 150 years after its discovery still no cure. About myself I'm Asian, live in Calgary, Canada. I'm 33, a father of 2 lovely kids at...
  5. P

    Don’t know where to turn, very worrying set of symptoms

    Hi everyone and thanks for taking the time to read my post. I am currently crippled by the fear that my worsening symptoms suggest ALS. For a time I put them down to anxiety but I can no longer accept that explanation as everything just seems too coincidental. It all started in August- I...
  6. K

    Sliding Sheets? How to Use, How to Move my PAL with One Person

    Hello all, yet another of my basic questions, can't seem to get research online for this, or by searching on sliding sheet or slider sheet on this forum! How do I use a sliding sheet? I've been currently going to the head of the bed, grasping the soaker pad while wrapping it close to her...
  7. K

    I am terrified. Haven't had much internal peace in the last month.

    First, I want to thank everyone that takes time out of their day to help people in this forum. After doing a lot of research and reading on this forum I have decided to post a thread, seeking help. The truth is that in the past few weeks all I can think about is ALS. As time goes on the more...
  8. M

    Please read this - serious now and I think I know what's caused it

    Hi. Please bear with me here. I am 39, male. Weight trained very seriously since 16 and in the summer weighed about 250lb. I have always been in perfect health until this year. Back in August I started getting muscle twitches randomly across my body and pretty bad fatigue, along with tight...
  9. E

    Resources for relatives living abroad

    Hello, I was not sure whether to make a new post or to post on a previous one on teens, but I think that living away changes the experience quite a lot so I figured it would be helpful to open a new thread. As some of you know, my father was diagnosed with PLS. I am from Spain, where he still...
  10. lgelb

    Biogen picks up Ionis SOD1 treatment option

    This is important not just for advancing SOD1 tx, but establishing another case where a smaller firm (where a lot of ALS work is being done) has successfully handed off a therapy to a larger firm. This helps incentivize ALS research. ---- [Adapted from Seeking Alpha] Having seen positive...
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