research

I have been trying to research ALS as my wife has been going through a hard time the past year and a half and with most recently having some symptoms that sound like it could be ALS. All I can do is try to be there for her, but Im scared myself over this. She has it set in her mind that she has...

...with his eyes.

Hi all, My name is Alaura. My very dear grandmother is battling MND. She has a very slowly progressing form of MND and has been battling for over 12 years. Which from my very general understanding is rare as some only get a few months. She just celebrated her 80th birthday last week. The thing...

You are an amazing group. Your posts have helped me through a very rough three months of symptoms and no diagnosis. After ending up in a ball in my backyard weeping 30 minutes ago, it seemed a good enough time for my first post. Perhaps given the length of my first post, I will be banned from...

Hi: I am sorry to post but have read all the stickies and really need support as I'm very scared. My symtpoms started off as cramping in my legs, and some tworching in my toes. Lately, I have felt bulbar symtpoms. I often spit up phlegm after drinking any liquid. I also weight myself ecru...

i am suprised there is no long running sticky about eye gaze technology. It seems to always be an area of concern and new things are popping up all the time in the marketplace. ive been doing eye gaze research for a well known company for over year and im still not aware ofb whats out there...

Has anyone tried the holistic approach ? Further testing for Lyme disease, heavy metal testing ect? My husband was recently dx with ALS and from doing some research it seems like his symptoms are different. He seems to have more generalized weakness that didn't particularly start in any limbs...

Hello all, my brother was diagnosed 2 weeks ago with ALS. He's 40 with a pregnant wife and a toddler. His diagnosis took about 15 months from first symptom - a fall. He now has a finger that doesn't work, an arm muscle that doesn't work, some weakness, twitches, and some spasticity. He also has...

So having been a part of this board for about a year, it seems that if anyone is looking for any type of "cure" in the next year or 2, it will have to come in the form of almost an accidental discovery. For example, Perampanel or some other existing drug that has an unexpected response to ALS...

My brother in law was diagnosed just this week with ALS. He currently exhibits slurred speech and left hand atrophy. He is so young though, in his late 30s. Although we as a family have done some research , I feel like the question on our minds is what now? How do we help support him? How...