renovations

  1. L

    Renovations: which are necessary?

    Hi, We would like to keep our family member with ALS at home. Which renovations would be necessary to make it easier to care for someone with ALS? At this point, cooking/house cleaning etc. is out of the question for the patient. So we are not looking at renos that will help the person do...
  2. P

    What happens from here

    This is my first time here. My brother was diagnosed with ALS 2 years ago. He still doesnt want to believe he has it but is starting to come to terms with it. Our mother just died 4 months ago and his wife is having a hard time dealing with his ALS. I take him to his doctors appointments and...
  3. BarryG

    Life is just too easy

    I guess I should probably not be on Facebook anymore because I am having a really hard time dealing with with the so inane and absolutely inconsequential status updates that people post. Things like "I'm so hungry, what will I have for dinner?" or "I should have another cup of coffee" or "My...
  4. mare

    A Reunion and a Friend Remembered

    Some of the "older" members may remember I story I told last year about Jim's friend who died suddenly. For those interested, it is in the thread entitled: "methods of action after being told by the doc that you don't have ALS" (sorry, I don't know how to quick link it! :oops:) Well, it is...
  5. joelc

    Prepare early and completely

    I was laying in bed last night thinking about this and had the wording all figured out. Now I can't remember how I was going to approach it! It is great to be getting older and not able to remember. LOL. This is going to be a 2 point post. The first point is that everyone should get things...
  6. mare

    A Year in Review

    Wow, looking back over the year has brought a lot of changes: cane, AFO's, transport wheelchair- check grab-bars in shower & at toilets, raised toilet seats, stair-chair- check Social Security disability, Medicare, supplemental insurance & drug plan- check walker, scooter- check permanent...
  7. K

    To live alone?

    I have been tiring more easily - good for about 1 hr socilizing or 10 min walk a day. I am a single mom. My two girls 11 and 14 are with me 4 days a week. I was having trouble getting into affordable housing because I own a house (which is in forclosure). My ex has asked me to move into his...
  8. O

    way to go Al

    I just watch the video of you AL, on ALSONT.ca, You are looking good and it was a great video all to watch. Your line I have ALS but not dead yet , was a great line. So many people are so afraid of ALS, that they see death before they see you an ALS survivor. The other vedio's where so...
  9. A

    What is your experience with your ALSA chapter?

    I am just curious to see what everyone's experience is in getting support from their ALSA chapter. I know for us, while we had a kind and compassionate case worker, there was very limited benefit from the chapter to us on a personal level. I was wondering if everyone might want to tell of their...
  10. J

    so my DR. says, “We have to rule it out.”

    :roll: Thank you all for being here at this forum, and thank God for the Internet and for the proliferation of information. Please bear with me as I ask some questions and provide some information about myself. About me I’m a Caucasian Male age 31. I’m 5’6” 150lbs. I have four...
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