We've been checking my husband's O2 during the day but hadn't at night. He has complex sleep apnea and REM Behavior Disorder (RBD) and has been on melatonin and a "Respironics BiPAP autoSV Advanced" for around 2 years at night. He's been on the Trilogy on and off throughout the day since...
Asking for questions to ask doctors…
I posted on your DIHALS re my husband several days ago after his 3rd neurologist referred him back for an EMG with the director of our ALS clinic. (First neurologist diagnosed bulbar-onset ALS in April 2013, sent him for EMG and 2nd opinion with ALS clinic...
2nd opinion
age
atrophy
back
bulbar
chair
choking
clinic
dihals
driving
emg
eye
family
fasciculations
female
food
increase
information
movement
muscles
neudexta
neurologist
night
onset
problems
rembehaviordisorder
shoulder
sma
speech
symptoms
tests
I have been lurking on the forum for a week or so, for reasons of finding out the latest thinking on ALS; its possible causes, latest treatments, and research. I have learned a great deal and I thank you all for how candid you have been here on this forum. So I, too, will be candid with you...
als
angry
book
brother
christmas
dad
death
dementia
depression
diabetes
diagnosed
diagnosis
early
eye
familial
familial als
father
fear
fingers
genetic
introduction
life
lithium
lyme disease
meds
movement
paralysis
parkinsons
pneumonia
problems
questions
reading
rembehaviordisorder
research
sad
sleep
symptoms
tests
therapy
treatments
weakness
wrong